1. < Kidney Cancer

Chromophobe Renal Cell Carcinoma

Posted by cindyc @cindysummit, Dec 11, 2022

I just had cryoablation in my right kidney for a small cancerous (CHRCC) tumor one month ago today. On Thursday, I go for a scan to see how things are, then my doctors will do "Active Surveillence."

I feel good but am a little nervous. The worrd "cancer" is scary even though my doctors are optimistic. I was wondering if anyone knows about the percentage rate that this renal cell carcinoma subtype returns.

Thank you.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Mar 25, 2023

@cindysummit, I wanted to check in and see how you are doing. Any updates?

REPLY
cindyc | @cindysummit | Mar 25, 2023

Thank you very much for thinking of me and for checking in.

The other night I attended a live webinar with Dr. Martin Voss from Sloan Kettering in New York. He spends all of his days with kidney patients and has a serious interest in Chromophobe Renal Cell Carcinoma. He recently received a $50,000 Grant from the Kidney Cancer Cure organization (KCCure). He presented some research findings on CHrcc and it was hopeful at best.

My next medical appointments are May 6th and May 8th. I will have both blood work and a body scan done. Honestly, as I get closer to the dates, I do feel myself getting a little anxious. I'm pretty busy as a kindergarten teacher, though, and the kids are so active, fun and upbeat! That does help a lot!

I am also trying to remember the optimism that both my oncologist and urologist displayed while reminding me that it was a small tumor.

I will keep you posted. Thank you again for your kindness and support.

REPLY
1 reply
cindyc | @cindysummit | Feb 19 2:06pm

Okay..15 months and 1 week of remission. I am enjoying the break from doctors and scans.

Just have to deal with GB stone.

Very cold in Jersey these days. Hope you are all having a good day!

CindyC

REPLY
andaziel | @andaziel | Feb 19 4:10pm
In reply to @cindysummit "Thank you very much for thinking of me and for checking in. The other night I..." + (show)
@cindysummit

Thank you very much for thinking of me and for checking in.

The other night I attended a live webinar with Dr. Martin Voss from Sloan Kettering in New York. He spends all of his days with kidney patients and has a serious interest in Chromophobe Renal Cell Carcinoma. He recently received a $50,000 Grant from the Kidney Cancer Cure organization (KCCure). He presented some research findings on CHrcc and it was hopeful at best.

My next medical appointments are May 6th and May 8th. I will have both blood work and a body scan done. Honestly, as I get closer to the dates, I do feel myself getting a little anxious. I'm pretty busy as a kindergarten teacher, though, and the kids are so active, fun and upbeat! That does help a lot!

I am also trying to remember the optimism that both my oncologist and urologist displayed while reminding me that it was a small tumor.

I will keep you posted. Thank you again for your kindness and support.

Jump to this post

There is a Dr Henske in Boston that studies Chromophobe as well. 🤷‍♀️ it’s a slow growing cancer for sure is what I was told. They removed my kidney for stage one but in the collecting system.
I worry about return which is most likely normal. I have not heard of any percentage of return.
I heard a speech that Dr Henske had given and there are double amts of glutathione in Chromophobe cells🤷‍♀️🤷‍♀️

REPLY
1 reply
cindyc | @cindysummit | Feb 19 6:29pm
In reply to @andaziel "There is a Dr Henske in Boston that studies Chromophobe as well. 🤷‍♀️ it’s a slow..." + (show)
@andaziel

There is a Dr Henske in Boston that studies Chromophobe as well. 🤷‍♀️ it’s a slow growing cancer for sure is what I was told. They removed my kidney for stage one but in the collecting system.
I worry about return which is most likely normal. I have not heard of any percentage of return.
I heard a speech that Dr Henske had given and there are double amts of glutathione in Chromophobe cells🤷‍♀️🤷‍♀️

Jump to this post

Yes, they are the two big names with Chromophobe. Yes, I was told slow growing but not so much if it returns.

My Urologist is quite hopeful. What can you teach me about glutathione. I do not use google for medical info! (Dr, Google is a quack).

CindyC

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