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Anyone have Chromophobe Renal Cell Carcinoma (CHRCC)?

Kidney Cancer | Last Active: Feb 23 10:40am | Replies (8)

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Profile picture for andaziel @andaziel

There is a Dr Henske in Boston that studies Chromophobe as well. 🤷‍♀️ it’s a slow growing cancer for sure is what I was told. They removed my kidney for stage one but in the collecting system.
I worry about return which is most likely normal. I have not heard of any percentage of return.
I heard a speech that Dr Henske had given and there are double amts of glutathione in Chromophobe cells🤷‍♀️🤷‍♀️

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Replies to "There is a Dr Henske in Boston that studies Chromophobe as well. 🤷‍♀️ it’s a slow..."

Yes, they are the two big names with Chromophobe. Yes, I was told slow growing but not so much if it returns.

My Urologist is quite hopeful. What can you teach me about glutathione. I do not use google for medical info! (Dr, Google is a quack).

CindyC

@andaziel I just got my path report from my uro onco and it’s stage 3 chRCC. I’m 1wk post op robotic right partial neprectomy with hepatic cyst fenestration that I have for over 20yrs I have been monitoring. Got it done at Stanford. Waiting for recommendations and ff up. What you said about Dr Henske from Boston saying lots of glutathione in chRCC shock me as I’m been taking glut tabs in more or less 10 yrs, until my sister who’s a doctor told me to stop as it may cause fatty liver.