Cholesteatoma

Posted by genuinekim @genuinekim, Fri, Feb 8 9:19am

Hello I thought I would add a discussion about cholesteatoma. I posted a bit about my story under introductions, but I wanted to know if there are others with cholesteatoma here.

Hi @genuinekim, welcome to Connect. I'm tagging @funkynotes who has also talked about cholesteatoma.
Kim, has your hearing loss changed since the recurrence and surgery last year? Did or do you also experience balance issues?

REPLY
@colleenyoung

Hi @genuinekim, welcome to Connect. I'm tagging @funkynotes who has also talked about cholesteatoma.
Kim, has your hearing loss changed since the recurrence and surgery last year? Did or do you also experience balance issues?

Jump to this post

Yes to both. After my first two surgeries I had a about a 40% loss in my effected ear. My most recent audio test showed a 89% loss. The reoccurrence destroyed a portion of the mastoid bone and left horizontal canal fistula,

REPLY

Hey there. I had my first cholesteatoma removed in 1996 in my left ear along with ossicukar chain reconstruction. In 2014 I had a cholesteatoma removed from my right ear, and again in 2016 in my righ ear along with ossicular chain reconstruction. In 2018 had another removal from my left ear. Now last week I had the titanium implant that was put in, in 1997, removed and a cartilage one put in. 4 surgeries in 5 years. I hope I'm done for awhile now.

REPLY
@angiee

Hey there. I had my first cholesteatoma removed in 1996 in my left ear along with ossicukar chain reconstruction. In 2014 I had a cholesteatoma removed from my right ear, and again in 2016 in my righ ear along with ossicular chain reconstruction. In 2018 had another removal from my left ear. Now last week I had the titanium implant that was put in, in 1997, removed and a cartilage one put in. 4 surgeries in 5 years. I hope I'm done for awhile now.

Jump to this post

Hi @angiee, welcome to Connect. Wow, 4 surgeries in 5 years. I bet you have seen the last of surgeries for some time. Can you tell me more about the titanium implant that you had done last week? How is the recovery going?

REPLY

Hi @colleenyoung ! Fingers crossed that the surgeries are done for now. 🙂 I actually had the titanium implant removed (it was put in, in 1997) and had it replaced with a cartilage prosthesis. Recovery is going good. I've got to remember not to overdo it and listen to my body. I was frustrated that I was too tired and worn out and not able to do anything around the house, BUT then I remembered that it had only been a week since surgery. Lol I sneeze and it's uncomfortable, I laugh or turn my head too quickly to the side and I'm reminded that yep… housework can wait! I am heading back to work today for a few hours. Going to do that a few days this week to get back in the swing of things. (Family owned men's retail store.. where my dad is my "boss" and brother is the manager. ) I was told I can just sit and not wait on customers, but help with other things that need attention asap. So.. off I go. Thanks for asking about recovery!

REPLY
@genuinekim

Yes to both. After my first two surgeries I had a about a 40% loss in my effected ear. My most recent audio test showed a 89% loss. The reoccurrence destroyed a portion of the mastoid bone and left horizontal canal fistula,

Jump to this post

Did you have the fistula repaired?

REPLY