1. < Liver Cancer

Cholangiocarcinoma Bile Duct Cancer: Want to share experiences?

Posted by egoodies @egoodies, Aug 14, 2023

Anyone currently battling bile duct cancer? I would love to speak to discuss your experiences. I was just recently diagnosed in June.

Interested in more discussions like this? Go to the Liver Cancer Support Group.

denvergirl | @denvergirl | 3 days ago
In reply to @journey2025 "Dan, Please tell me more about your surgery and recovery. My husband had his surgery on..." + (show)
@journey2025

Dan,

Please tell me more about your surgery and recovery. My husband had his surgery on March 3, 2025 and we are still hospitalized. It seems he keeps having one complication after another. What’s a realistic expectation, please advise. We were happy to hear the surgery was a success with negative margins.

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Denvergirl...Very sorry about the unexpected complications. I had surgery last Oct at Mayo Rochester for bile duct cancer. I was lucky, clear margins and left the hospital on day 3.
I hope you are better soon.

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1 reply
denvergirl | @denvergirl | 3 days ago

Are you taking Capecitabine?
I am taking it prophylacticly after successful bile duct CA surgery.
I am experiencing significant neuropathy in feet and hands after 5 three week cycles.
Anyone else dealing with this, and if so, any suggestions for improving it?

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journey2025 | @journey2025 | 2 days ago
In reply to @denvergirl "Denvergirl...Very sorry about the unexpected complications. I had surgery last Oct at Mayo Rochester for bile..." + (show)
@denvergirl

Denvergirl...Very sorry about the unexpected complications. I had surgery last Oct at Mayo Rochester for bile duct cancer. I was lucky, clear margins and left the hospital on day 3.
I hope you are better soon.

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Denvergirl, congratulations on your successful surgery with clear margins! My husband’s surgery was over 14 hours with negative margins. Our complications started on day 7. Today is day 29 ~ I am believing he will be healthy enough to go home this month. 💛🙏💛

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1 reply
denvergirl | @denvergirl | 1 day ago
In reply to @journey2025 "Denvergirl, congratulations on your successful surgery with clear margins! My husband’s surgery was over 14 hours..." + (show)
@journey2025

Denvergirl, congratulations on your successful surgery with clear margins! My husband’s surgery was over 14 hours with negative margins. Our complications started on day 7. Today is day 29 ~ I am believing he will be healthy enough to go home this month. 💛🙏💛

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Did he have bile duct reconstruction? If so, that is lots more complicated than my liver resection.
Wishing you both the very best. Are you at Mayo?

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