Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Hi My husband was just diagnosed with stage 4. He just started his first chemo this Monday. we don't know about surgery yet. Were you able to have surgery to remove the tumor?
Mary

Hello Kris @krishh

Thanks for your encouraging words!

Teresa

Mine is stage 4 and I have been living with it quite well for 27 months. Read my post above about my journey. I had a bad spell Jan-March this year that was the result of reaction to chemo as well as other infections, but other than that, I have basically been living with it, receiving treatment and living life. I know it won't last, but I'm doing better than what was initially suggested to me about the progression of this disease. So tell him to hang in there - I hope his progression is as slow as mine! Kris

I have no idea what to expect in the near future, all we know is it is BAD! stage 3.

I have cholangiocarcinoma. I've been dealing with it for 27 months. What kind of questions do you have? Happy to correspond with you if you wish.  ~ Kris

My name is Laura, and my children's father, & my ex of 20+ years just diagnosed a couple weeks ago with ADENOCARCINOMA, most consistent with CHOLANGIOCARCINOMA or upper GI primary. Going to Mayo-Rochester, MN on the 15th. Would like to hear anything about others experience , if any.

Thank you Colleen - I will read through the thread on Xeloda.

Kris,
You may be interested in following this discussion to hear other peoples' experiences with Xeloda. I'll continue to search for members who have had the Xeloda/Gemcitabine combination.
– Xeloda http://mayocl.in/2lSV5o9

@krishh I am pleased to hear that - yes having Mayo in your backyard is a good thing! Teresa

Hi Teresa - all my treatments have been at Mayo. My surgery was at Mayo Rochester, MN and post surgery treatments have been in out state (Minnesota) Mayo branches. Feel very fortunate to have Mayo in my back yard!