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Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Liver Cancer | Last Active: Apr 16 5:58pm | Replies (195)
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@afrancesca

This is a very promising new first line trial. Glad you are on it. Who is your doctor here in AZ? I've been on a clinical trail here @ Mayo in AZ (Pemigratinib-a gene inhibitor drug that targets the FGFR2 mutation) and on it I've have stable disease with a high quality of life for 18 months now. See my post earlier this morning about all the available resources at the Cholangiocarcinoma Foundation. Happy to connect with you locally---I've been through the gem/cis regimen(back in 4/18) and come out the other side so happy to offer you some hopeful words if you need them. ---Andrea

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Replies to "This is a very promising new first line trial. Glad you are on it. Who is..."
Rosemary, Volunteer Mentor | @rosemarya | Feb 4, 2019

Andrea, Welcome to Connect and for sharing this information. I am not experienced with any of this and I appreciate seeing the promise of treatment options for those who are affected. Words of hope and encouragement are vital to positivity during a serious medical diagnosis.
Andrea, This is a publicly viewed sight, and for your own protection and privacy, I urg you not to post your personal contact information.

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