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Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?
I'm on my fourth line of treatment. What treatments are others receiving for this? Thanks ~
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HugInterested in more discussions like this? Go to the Liver Cancer Support Group.
I'm on my fourth line of treatment. What treatments are others receiving for this? Thanks ~
Interested in more discussions like this? Go to the Liver Cancer Support Group.
ConnectConnect with thousands of patients and caregivers for support and answers.
Kieran, if you would like to consider a second opinion at Mayo Clinic, here is the contact information to self-refer or for a physician referral http://mayocl.in/1mtmR63
Here’s more info about Cholangiocarcinoma care at Mayo Clinic https://www.mayoclinic.org/diseases-conditions/cholangiocarcinoma/care-at-mayo-clinic/mac-20352416
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1 ReactionWould like to talk with someone about this we just found out my dad has this. Please reach out with any information you may have. I would appreciate it so much
This is a diagnosis for my dad. He has currently been through procedures and tests to find out what was wrong with him and after months this was the diagnosis. He has been offered chemo as a treatment and just wanted to look into a second opinion for him to maybe get some other options
Hi Keiran86, welcome. I moved your message to this existing discussion group in the Cancer group about cholangiocarcinoma (https://connect.mayoclinic.org/discussion/cholangiocarcinoma-bile-duct-cancer-anyone-else-dealing-with-this/). I did this because I wanted to help connect with other members who have experience with bile duct cancer like @lberg @jerrydrennan @lisamb @mngardenaddict @mcarrel @afrancesca @chicory2010 @clarke6 @summer83 @tball3748 @wjdemarco and others. Click VIEW & REPLY to scroll through past posts and learn more about the stories of others and treatments they've had.
Here's another related discussion that may also interest you:
- Bile Duct Cancer Scare https://connect.mayoclinic.org/discussion/bile-duct-cancer-scare/
Kieran, is this a new diagnosis for you? What treatment options are being suggested for you?
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1 ReactionAnyone have this and if so what kind of treatments did you go through?
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1 Reactionthanks for ,your response, for some reason I have no tumor perhaps because it was caught early but suspect that may be coming . I am on Gem/Cis since November as well, getting second opinion this week and they have me in the database for genetic trials so maybe will learn something more.
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1 ReactionThe side effects aren’t as bad as I read them to be (so far). Definitely more hair loss, a bit tired the first day of my 2nd cycle. Mostly very dry eyes when I get up in the morning and dry mouth. I found a FB page for other patients taking Pemazyre and got product info on eye drops and mouth spray. So far so good.
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1 ReactionYes I’m waiting for my next scan. I had done the gem/Cis chemo Sept - Nov then I was approved to start a targeted therapy called Pemazyre since I did the genetic testing and they found I had the FGFR2 mutation. 30% chance that this will shrink my tumor, so I figured, stay home, take a daily pill and get odds better than winning the lottery….why not, right?
Hi @wjdemarco. I see you sent meant this message for @tball3748 but without the @ sign they might not see this message so I’ve reposted it for you.
“ hi @tball3748 I was just diagnosed in November and would like to stay in touch @wjdemarco”
hi tball I was just diagnosed in November and would like to stay in touch @wjdemarco