Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Thank you
Have reconciled this with the Lord and am grateful for the
care I have recieved. Going through final preparations for my corporation with or without me and made burial arrangements but now focused on helping my wife through this. She had cancer five years ago but is clear now . This brings back terrible memories for both of us. Proceeding with house fix up and rebuilding gardens with help. Energy is easily lost but reset through 1 hour PT each week. Finding peace in walking with my rosary

2nd opinions are good. Even though I’m in the middle of my journey, my husb & I are getting “things in order” like we really should have before my diagnosis. We daily turn towards God for strength and love every day thankful to get a chance to spend time w/each other & our kids and grandkids. Don’t waste too much time being angry. You aren’t in pain right now, so make the most of your time. Mayo has been good for us, glad we went to them for our 2nd opinion. Remind your wife that we all have limited time in this world, so make the most of what we have and get ready for the afterlife. Once I reconciled all this with God, I’ve had waaaay more peace.

27 months sounds better than what my doc said. early detection by accident in ER. Cis Gem since November.
16 chemos and now going to Mayo for a CT/MRI to get second opinion.
No pain, no real reactions just trying to keep WBC and ANC up so they can treat me.
Next step may be no Cisplatin , just gem , feel like they are giving up . marked my file as palliative, my wife went nuts.
Cancer was discovered in Lymph Nodes lowered abdomen as second site, source was Bile Duct unspecified.
Health 70 year old, Bill

Kieran, if you would like to consider a second opinion at Mayo Clinic, here is the contact information to self-refer or for a physician referral http://mayocl.in/1mtmR63

Here’s more info about Cholangiocarcinoma care at Mayo Clinic https://www.mayoclinic.org/diseases-conditions/cholangiocarcinoma/care-at-mayo-clinic/mac-20352416

Would like to talk with someone about this we just found out my dad has this. Please reach out with any information you may have. I would appreciate it so much

This is a diagnosis for my dad. He has currently been through procedures and tests to find out what was wrong with him and after months this was the diagnosis. He has been offered chemo as a treatment and just wanted to look into a second opinion for him to maybe get some other options

Hi Keiran86, welcome. I moved your message to this existing discussion group in the Cancer group about cholangiocarcinoma (https://connect.mayoclinic.org/discussion/cholangiocarcinoma-bile-duct-cancer-anyone-else-dealing-with-this/). I did this because I wanted to help connect with other members who have experience with bile duct cancer like @lberg @jerrydrennan @lisamb @mngardenaddict @mcarrel @afrancesca @chicory2010 @clarke6 @summer83 @tball3748 @wjdemarco and others. Click VIEW & REPLY to scroll through past posts and learn more about the stories of others and treatments they've had.

Here's another related discussion that may also interest you:
- Bile Duct Cancer Scare https://connect.mayoclinic.org/discussion/bile-duct-cancer-scare/

Kieran, is this a new diagnosis for you? What treatment options are being suggested for you?

Anyone have this and if so what kind of treatments did you go through?

thanks for ,your response, for some reason I have no tumor perhaps because it was caught early but suspect that may be coming . I am on Gem/Cis since November as well, getting second opinion this week and they have me in the database for genetic trials so maybe will learn something more.

The side effects aren’t as bad as I read them to be (so far). Definitely more hair loss, a bit tired the first day of my 2nd cycle. Mostly very dry eyes when I get up in the morning and dry mouth. I found a FB page for other patients taking Pemazyre and got product info on eye drops and mouth spray. So far so good.