For the love of God have faith . I have bile duct stage 4,I'm in my 2nd year and one month doing grate,stable with tibsovo cancer pills.
If you don't mind
I would be praying for you.
Many blessings for healing.
I was diagnosed with Bile duct cancer 2 years ago has affected the liver,had 4 treatments of chemo dindt helpone year ago I started with tibsovo cancer pills are working wonderful,been stable however I also had Y90 radiation treatment to reduce the tumor .Sorry my grammar is limited to explain better. I'm not sure if we can exchange phoe #.
It will be easier to explain. God bless you
Carmen
Has anyone tried Histotripsy? My husband that has Cholangiocarcinoma since Dec 2023 will be having the Histotripsy procedure. It is new in our area and seems to be the best non-invasive option. The problem is our insurance won’t pay for it, and it is around a $17,000 procedure plus other expenses. We are looking for ways to help with some of the finances for it, but it has been a struggle to find. We will go into debt to have it done, but if anyone knows of any grants or other financial options, please share. We did try for financial assistance but don’t qualify.
Has anyone tried Histotripsy? My husband that has Cholangiocarcinoma since Dec 2023 will be having the Histotripsy procedure. It is new in our area and seems to be the best non-invasive option. The problem is our insurance won’t pay for it, and it is around a $17,000 procedure plus other expenses. We are looking for ways to help with some of the finances for it, but it has been a struggle to find. We will go into debt to have it done, but if anyone knows of any grants or other financial options, please share. We did try for financial assistance but don’t qualify.
Hi,
I was diagnosed in January 2023 with pre-hillar stage 3B cholangiocarcinoma. At Mass General Hospital, they told ne it's unresectable.
I went through 16 infusion with 3 drugs, then 30 sessions of radiation.
After several months if uncertainty and anguish, the UPMC approved ne for loving donor liver transplant.
I had a 15.30 hours successful surgery..then, to minimize the risk of recurrence, I started 6 months of capecitabine, 2000 mg, twice a day.
So far, the images and kab work shiw no sign of recurrence.
My oncologist warns ne that I have 50% chance of recurrence but Mayo data shows %30 chance.
My tumor was 3 cm and no spread to lymph nodes or other organs.
Post-surgey Pathology showed that the tumor was completely dead with no live cancer cell, proving that pre-tranplant treatment was effective.
I had no major issue during the chemo and the tumor shrank a bit during the treatment.
Wish every other patient the success I have had so far.
Thanks
Hassan, 67 years old in CT
Hi,
I was diagnosed in January 2023 with pre-hillar stage 3B cholangiocarcinoma. At Mass General Hospital, they told ne it's unresectable.
I went through 16 infusion with 3 drugs, then 30 sessions of radiation.
After several months if uncertainty and anguish, the UPMC approved ne for loving donor liver transplant.
I had a 15.30 hours successful surgery..then, to minimize the risk of recurrence, I started 6 months of capecitabine, 2000 mg, twice a day.
So far, the images and kab work shiw no sign of recurrence.
My oncologist warns ne that I have 50% chance of recurrence but Mayo data shows %30 chance.
My tumor was 3 cm and no spread to lymph nodes or other organs.
Post-surgey Pathology showed that the tumor was completely dead with no live cancer cell, proving that pre-tranplant treatment was effective.
I had no major issue during the chemo and the tumor shrank a bit during the treatment.
Wish every other patient the success I have had so far.
Thanks
Hassan, 67 years old in CT
Mine is stage 4 and I have been living with it quite well for 27 months. Read my post above about my journey. I had a bad spell Jan-March this year that was the result of reaction to chemo as well as other infections, but other than that, I have basically been living with it, receiving treatment and living life. I know it won't last, but I'm doing better than what was initially suggested to me about the progression of this disease. So tell him to hang in there - I hope his progression is as slow as mine! Kris
Hi,
I was diagnosed in January 2023 with pre-hillar stage 3B cholangiocarcinoma. At Mass General Hospital, they told ne it's unresectable.
I went through 16 infusion with 3 drugs, then 30 sessions of radiation.
After several months if uncertainty and anguish, the UPMC approved ne for loving donor liver transplant.
I had a 15.30 hours successful surgery..then, to minimize the risk of recurrence, I started 6 months of capecitabine, 2000 mg, twice a day.
So far, the images and kab work shiw no sign of recurrence.
My oncologist warns ne that I have 50% chance of recurrence but Mayo data shows %30 chance.
My tumor was 3 cm and no spread to lymph nodes or other organs.
Post-surgey Pathology showed that the tumor was completely dead with no live cancer cell, proving that pre-tranplant treatment was effective.
I had no major issue during the chemo and the tumor shrank a bit during the treatment.
Wish every other patient the success I have had so far.
Thanks
Hassan, 67 years old in CT
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For the love of God have faith . I have bile duct stage 4,I'm in my 2nd year and one month doing grate,stable with tibsovo cancer pills.
If you don't mind
I would be praying for you.
Many blessings for healing.
I was diagnosed with Bile duct cancer 2 years ago has affected the liver,had 4 treatments of chemo dindt helpone year ago I started with tibsovo cancer pills are working wonderful,been stable however I also had Y90 radiation treatment to reduce the tumor .Sorry my grammar is limited to explain better. I'm not sure if we can exchange phoe #.
It will be easier to explain. God bless you
Carmen
@reachingout, you may wish to check out these discussions related to histotripsy:
- Anyone heard about Histotripsy for liver NETs?
https://connect.mayoclinic.org/discussion/histotripsy/
- Has anyone out there tried Histotripsy for tumors in the liver?
https://connect.mayoclinic.org/discussion/histotripsy-1/
Have you talked to an oncology social worker? They can often help find and apply for financial assistance for treatment. Learn more in this blog post:
- How an Oncology Social Worker Can Help https://connect.mayoclinic.org/blog/cancer-education-center/newsfeed-post/how-an-oncology-social-worker-can-help/
Has anyone tried Histotripsy? My husband that has Cholangiocarcinoma since Dec 2023 will be having the Histotripsy procedure. It is new in our area and seems to be the best non-invasive option. The problem is our insurance won’t pay for it, and it is around a $17,000 procedure plus other expenses. We are looking for ways to help with some of the finances for it, but it has been a struggle to find. We will go into debt to have it done, but if anyone knows of any grants or other financial options, please share. We did try for financial assistance but don’t qualify.
Thank you so much
Hassan, wishing you well and hoping no recurrence.
Take care.
Thank you.
I wish the same for all the patients battling this cancer
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1 ReactionHassan -- Enjoy the leaves this fall -- you earned it.
Dan
Hi,
I was diagnosed in January 2023 with pre-hillar stage 3B cholangiocarcinoma. At Mass General Hospital, they told ne it's unresectable.
I went through 16 infusion with 3 drugs, then 30 sessions of radiation.
After several months if uncertainty and anguish, the UPMC approved ne for loving donor liver transplant.
I had a 15.30 hours successful surgery..then, to minimize the risk of recurrence, I started 6 months of capecitabine, 2000 mg, twice a day.
So far, the images and kab work shiw no sign of recurrence.
My oncologist warns ne that I have 50% chance of recurrence but Mayo data shows %30 chance.
My tumor was 3 cm and no spread to lymph nodes or other organs.
Post-surgey Pathology showed that the tumor was completely dead with no live cancer cell, proving that pre-tranplant treatment was effective.
I had no major issue during the chemo and the tumor shrank a bit during the treatment.
Wish every other patient the success I have had so far.
Thanks
Hassan, 67 years old in CT
Thank you Dan.