Chiari Malformation Type 1 and getting a second opinion
My daughter has CM1, decent was 13 mm when found in 2012, then 12 in 2014 and now the new MRI states it is 8.5 with mild crowding. She has suffered from migraines since 2012 with shooting pains in random spots, she has had vision issues off and on with her migraines from spots, blurriness, tunnel vision to completely not being able to see out of one eye. She also has dizziness and nausea with every migraine. Neurologist does not believe it is related to the chiari due to it being random locations and a lot of ocular migraines and facial pain. She has had bad side effects with daily migraine medication that prevents her from being able to take them. She had been managing with excedrine and Maxallt. She has told me she has also been experiencing shooting pains randomly over the years but they happen it spurts and go away pretty quickly so she never remembers to bring them up because the migraines are always worse. Over the last year and a half she has been getting more frequent migraines accompanied by neck, back and jaw pain and the medicine does not help, lead to two hospitals visits in two weeks. She has been given new medication “amitriptyline 25mg” but has only taking the edge off. She followed up with Neurosurgeon and he does not believe she is a good candidate for the decompression because he believes her symptoms may continue after recovery. She is 19 and now believes there is no point to trying in life because she will always lose her jobs due to amount of time she is unable to function, misses class to often to continue college and will not be able to be successful. Would it be worth the trip for a second opinion to the Mayo Clinic?
She also has sever social anxiety, panic disorder and selective mutism which makes it very hard for her to convey everything going on.