Mayo Clinic Connect
Has anyone taken Osimertinib before?
Xalkori is a once daily capsule.
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@2onlow8– Well that's easy! I have what is called Multifocal Adenocarcinoma of the lungs and am not a candidate for targeted therapy as yet. I'm 4 A.
Since I started it in Nov 2018 there are no new mets or tumours
Did you changed your diet?
I am currently on Chemo for Lung stage IIIA, The plan is to take TAGRISSO after CHEMO. Good to hear it works on you@shaila1902.
Sorry just saw this question about diet. No, not really. But eat at fixed times ,simple food . Use anantacid Gelusil and some stretching exercises, walking ,meditation help a lot. How are you?
You will find it to be a lot simpler than chemo! And there could be some rash but it goes away. If you have any concerns I would be happy to talk to you about them. Glad you were foound suitable for this TKI. The new studies show very good results specially for 3 A patients. I am a 4C
Liked by Colleen Young, Connect Director
Hi, I have been on Tagresso since Nov 2018. I have lung cancer stage 4 with brain mets.
I have been on Tagrisso for over a year. Now with Avastin chemo every 3 Weeks.
Why did you have to start chemo when you were already on Tagrisso?
Hello @lynnycooks and welcome to Mayo Clinic Connect- so happy you are here! This is a great place to connect with people with similar experiences and ideas. When were you diagnosed? If you are comfortable, can you tell us more about health journey? I'm looking forward to reading more of your posts!
Liked by Merry, Volunteer Mentor
I was diagnosed after 2 month of unusual headaches. Went for a CT and a large tumor was found.
Was sent to emerge where they scanned the rest of me and found a large lung tumor. Bam, stage 4 lung cancer. This all started on October 16, 2017.
First thing was brain surgery on Halloween of that year. I was on Tarceva for a year until it stopped working. Then was put on Tagrisso. That worked for about 1 year, Avastin chemo was added after Tagrisso was not working as well. Every 3 weeks I have an infusion. Makes me feel sick, not super bad.
I also had an xgeva bone shot every 4 weeks for the first time 2 years. I had another brain surgery on February 1st, 2019. That one slowed me down slot more than the first one. I had 3 bad month following it. Do ok now, I lack energy, don’t sleep well and always have a headache. But, I’m still alive!!!
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