What chemo did you have with stage 4 pancreatic cancer?

Posted by rtw007 @rtw007, May 19 5:52am

Those of you with stage 4 pancreatic cancer, which chemo regimen have you taken? How bad are the side effects? Are you sick until the next round of chemo? How much time is the chemo expected to give you?

Hi @rtw007, I can see you have questions about starting chemo for stage 4 pancreatic cancer. Let me bring in fellow members like @marvinjsturing @nogginquest @ginpene05 @beachgirl23 @pamelaanne @julie2018 @sadiegrace @wrolsen @dotmoto @bm69 and @cjgamble to share their experiences with chemo.

Rtw007, when do you start chemo and what regimen? What treatments have you had?

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I started with 5-FU in late Nov./20 every two weeks. I had some nausea at first, but was prescribed some pills to help with it. Now, when I am three or four days past chemo infusion days I'm feeling great – wouldn't know there is a problem! Good luck to you. Stay positive and keep your friends and family in the loop. They can be the best medicine ever.

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Sloan kettering gave my wife gemcitabine; it didn't work;she died.

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@italice

Sloan kettering gave my wife gemcitabine; it didn't work;she died.

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Hello @italice and welcome to Mayo Clinic Connect. I am so sorry to hear of your wife's passing. Losing a loved one is excruciating. When did your wife lose her battle with cancer?

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@rtw007 my wife was diagnosed at stage 3 in 2019 and immediately started folfirinox (including 5fu and oxalyplaten).9 rounds every other week before radiation and surgery. 1 year post surgery she became stage 4 with a tumor on the ovary leading to more surgery and now more chemo. She is now on GAC gemcitibine, abraxane and cisplaten. Prescribed 6 x 21 day cycles, 2 weeks on, 1 week off. The side effects have been brutal. Plummeting white count necessitated treatment with nulasta. Nausea treated with Ativan, compazine and zofran. Non-stop diarrhea treated with questron, Imodium and lomatil. Tincture opium has been added to combat the diarrhea as the others have no benefit. Fatigue is brutal. She's bedridden for 4 days after day 1 treatment of cycle and 7 days in bed after the day 8 treatment. If her numbers and scans are good after cycle 3, they're going to eliminate the cisplaten to try to lighten the side effects. Hopefully you weather the treatment far better than my poor wife. Good luck.

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