Cerebral amyloid angiopathy
I was having an MRI to work up onset of headaches, 3 wks. duration and this was seen on the MRI. I'm an RN and scared out of my mind that I'm going to have a stroke. I'm not reading anything online that sounds like anyone can do anything. Is there any reason to go to Mayo? Might I still live a long life? Is there any chance the MRI was read incorrectly? I'm having a hard time here with all this.
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So sorry to hear your story, and definitely understand sometimes feeling overwhelmed. My husband was diagnosed with CAA in 2017 after having 2 episodes of numbness in his right arm; MRI showed small bleeds and other changes. Those episodes lasted 20 to 30 minutes and continued off and on for 6 months, then stopped. He had been having some cognitive issues before, most noticeable was the loss of his previously perfect directional sense. He was/is otherwise is great health, and we basically decided to forget about it till we needed to worry. We had almost 5 good years with no other symptoms, but in 2021 he had a major bleed (stroke) affecting his left side -- some difficult complications kept him in and out of hospital for a few months. He now uses wheelchair, walker, cane, depending on the circumstances. His being able to walk some is a great help, as he's able to go to the bathroom unassisted, etc. Cognition continues to get worse, but many people don't even notice. But he doesn't have the concentration to read anything more than a page or two and he can't do numbers at all, which was his prior specialty, never looks at his computer and even has trouble with the phone. He is now 81 and his physicals show him still in excellent health -- lucklily no heart or blood pressure or any other issues -- only thing wrong with him is CAA. I still work part time so we have a caregiver M-F from 11 to 5, which is a lifesaver for me. Trying not to worry about the future and missing the active life we had before are the hardest things for me. I find reading comments by others really helps me remember we are not alone.
Went to @gbiffart link for her story and it has been deleted.
Can you please share what thing scan be done to slow the progression sown and the activities that could be helpful.
Diagnosed with brain micro vascular brain disease. Can not get an answer if it can can affect vision. I am 71 years old and diabetic. Had cataract surgery the past January. Noticed recently having difficulties with night vision and constantly feel light headed. Neurologist does not know what is causing it?