1. < Stroke & Cerebrovascular Diseases
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Cerebral amyloid angiopathy

Posted by montanapets @montanapets, Dec 14, 2011

I was having an MRI to work up onset of headaches, 3 wks. duration and this was seen on the MRI. I'm an RN and scared out of my mind that I'm going to have a stroke. I'm not reading anything online that sounds like anyone can do anything. Is there any reason to go to Mayo? Might I still live a long life? Is there any chance the MRI was read incorrectly? I'm having a hard time here with all this.

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oldkarl | @oldkarl | Mar 3, 2021
In reply to @IndianaScott "Hello @michaeleta I am not any kind of medical practitioner, but in all the reading I..." + (show)
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Hello @michaeleta I am not any kind of medical practitioner, but in all the reading I have done the cause of cerebral amyloid angiopathy is not known at this time. I can say I have never read any journal articles saying the cause is blunt force of any kind. Rather it seems the culprit may be the depositing of abnormal amyloid protein.

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@IndianaScott, I have a form of cerebral angiopathy sometimes called "disappearing White Matter". It is diagnosed as a portion of my Gelsolin, or AKA Finnish Amyloidosis. It is a rare one, something around 1 of every 2,000,000 physician visits results in the dX. Every person I can find who is diagnosed with FKTN (Fukutin Limb Girdle Muscular Dystrophy- LGGMD-4) who has been tested for Amyloid also also has Gelsolin. Including me, and about 100 others around the world. So the CA might occasionally be a bit mis-diagnosed as only from Gelsolin (GSN - OMIM: 105120 or 137350)

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michaeleta | @michaeleta | Mar 5, 2021
In reply to @oldkarl "@indianascott, I have a form of cerebral angiopathy sometimes called "disappearing White Matter". It is diagnosed..." + (show)
Profile picture for oldkarl @oldkarl

@IndianaScott, I have a form of cerebral angiopathy sometimes called "disappearing White Matter". It is diagnosed as a portion of my Gelsolin, or AKA Finnish Amyloidosis. It is a rare one, something around 1 of every 2,000,000 physician visits results in the dX. Every person I can find who is diagnosed with FKTN (Fukutin Limb Girdle Muscular Dystrophy- LGGMD-4) who has been tested for Amyloid also also has Gelsolin. Including me, and about 100 others around the world. So the CA might occasionally be a bit mis-diagnosed as only from Gelsolin (GSN - OMIM: 105120 or 137350)

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thanks for your reply, but not the area i am looking for.

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michaeleta | @michaeleta | Mar 5, 2021
In reply to @amandajro "Hello @michaeleta and welcome to Mayo Clinic Connect. Based on your post, I wanted to share..." + (show)
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Hello @michaeleta and welcome to Mayo Clinic Connect. Based on your post, I wanted to share a previous conversation that you might find helpful on this topic.

-Cerebral Amyloid Angiopathy:
https://connect.mayoclinic.org/discussion/cerebral-amyloid-angiopathy/
You will notice that I consolidated your two posts into just this one in this group.

Can you share a little more about your history and if this is a diagnosis or if you are trying to identify based on symptoms?

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no. I had a brain injury from an explosion in the military and it was diagnosed later as Amyloid Angiopathy. Trying to figure out why this diagnosis? any ideas what the reason might be?

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oldkarl | @oldkarl | Mar 5, 2021
In reply to @michaeleta "can cerebral amyloid angiopathy be caused by an explosion or physical bump on the head?" + (show)
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can cerebral amyloid angiopathy be caused by an explosion or physical bump on the head?

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@michaeleta, not a clue for that reason, unless you had an AA gene from birth, and the injury just activated it. Other than than that, do you have an Amyloidosis gene in your genome? It would seem worth it to find out.

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michaeleta | @michaeleta | Mar 6, 2021
In reply to @amandajro "Hello @michaeleta and welcome to Mayo Clinic Connect. Based on your post, I wanted to share..." + (show)
Profile picture for Amanda Roe @amandajro

Hello @michaeleta and welcome to Mayo Clinic Connect. Based on your post, I wanted to share a previous conversation that you might find helpful on this topic.

-Cerebral Amyloid Angiopathy:
https://connect.mayoclinic.org/discussion/cerebral-amyloid-angiopathy/
You will notice that I consolidated your two posts into just this one in this group.

Can you share a little more about your history and if this is a diagnosis or if you are trying to identify based on symptoms?

Jump to this post

can a TBI be mistaken for CAA from a CT scan from a 70 year old patient who had the injury 30 years previous?

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jvm74 | @jvm74 | Mar 17, 2022
In reply to @michaeleta "can cerebral amyloid angiopathy be caused by an explosion or physical bump on the head?" + (show)
Profile picture for michaeleta @michaeleta

can cerebral amyloid angiopathy be caused by an explosion or physical bump on the head?

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My 71 yr. old daughter has just been diagnosed with Cerebral amyloid angiopathy. Not good news and just searching for some hope!! She has been very sleepy, etc. Can you tell me anything?

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kailyn427 | @kailyn427 | Mar 17, 2022
In reply to @jvm74 "My 71 yr. old daughter has just been diagnosed with Cerebral amyloid angiopathy. Not good news..." + (show)
Profile picture for jvm74 @jvm74

My 71 yr. old daughter has just been diagnosed with Cerebral amyloid angiopathy. Not good news and just searching for some hope!! She has been very sleepy, etc. Can you tell me anything?

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My father, 69 years old just got diagnosed with cerebral amyloid angiopathy, after having some memory issues. Such sad news and frustrating that they have no advancement in any treatments for this yet.

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jvm74 | @jvm74 | Mar 22, 2022
In reply to @kailyn427 "My father, 69 years old just got diagnosed with cerebral amyloid angiopathy, after having some memory..." + (show)
Profile picture for kailyn427 @kailyn427

My father, 69 years old just got diagnosed with cerebral amyloid angiopathy, after having some memory issues. Such sad news and frustrating that they have no advancement in any treatments for this yet.

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She's home now but now on Prednisone.

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kailyn427 | @kailyn427 | Mar 22, 2022
In reply to @jvm74 "She's home now but now on Prednisone." + (show)
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She's home now but now on Prednisone.

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I hope this helps her. Sending prayers your way!

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jvm74 | @jvm74 | Mar 22, 2022
In reply to @kailyn427 "I hope this helps her. Sending prayers your way!" + (show)
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I hope this helps her. Sending prayers your way!

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Thank you!

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