Cerebral amyloid angiopathy

I have a question about amyloid angiopathy. I have been having a bad headache for the last few days and then on monday I had an incident. I was driving home which was only about 3 miles and in a neighborhood that I've lived in for 30 years. I was driving down the street heading for the street to turn and i couldn't figure out where to turn. I knew the street should be there but I couldn't figure where it was or even what the name was. Is it possible this could be caused by this disease-bleeding in the brain?

I am no expert, but it sure sounds like it to me. My mother also had a problems judging distances. Get a lot of rest and the best of healing to you.

I was diagnosed in 2010 wit Afib. I was put on an adult aspirin once daily. Then in January2015 I had a brain hemmorage stroke and was diagnosed with cerebral amyloid Angiopathy. I can no longer take any blood thinners of any kind, leaving me in quite a tight spot. I am 67 years old. I understand your concerns and I too have been considering seeing someone at Mayo who is very familiar with CAA.

@nanatessie, I wanted to follow-up with your concerning symptoms of disorientation and memory. Did you consult your doctor? Any news?

Thank you for checking. I did not check with the doctor because I wanted to see if it happens again. So far it hasn't. I keep having headaches so I'll probably call them next week

I also have been diagnosed with caa and am also on coumadin-blood thinner. Because I had a valve replacement in 2000, I don't have the option of coming of the blood thinner. They keep telling me because of this, it's going to get worse. But I have no choice. I am 69 yrs old. I'm sorry you're going through this

I've been diagnosed with Cerebral Amyloid Angiopathy. It's a rare brain disease for which there is no treatment. I am looking for someone who also has it whom I can share thoughts with.

@trishannabanana, you'll find discussions about cerebral amyloid angiopathy here in the Stroke & Cerebrovascular Diseases group (https://connect.mayoclinic.org/group/cerebrovascular-diseases/). I moved your message to this long running discussion about CAA here:
– Cerebral amyloid angiopathy: https://connect.mayoclinic.org/discussion/cerebral-amyloid-angiopathy/

I did this so you can connect more easily with fellow CAA members like @nanatessie @cbenson524 @surf362 @sistertwo @shedwina @jkrysman @sphillips1952 @oldkarl and more.

Trishanna, can you share a bit more about you? When and how did you learn of your diagnosis? How are you doing today and what do you find challenging?