Cerebellum atrophy with no known cause
My husband was diagnosed with cerebellum atrophy with no known cause in February. We still don’t know the cause. The doctors are leaning towards genetic. We still do not know the prognosis or how fast it will go. He is 48. Use to be a police officer. He is taking it hard. We have only been married for 2.5 months. Some days he does fine or days he can hardly walk. We just don’t know what to do if anything.
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Not that I know of. But I had neck mri 3 mos ago and the radiologist said I just have degenerative disk disease.
Ok. The MRI would have be be done to the back of the head. Including the top portion of the neck.
Did you check for SS?
@stevegrinstead What is SS?
Superficial Siderosis. Dr. Kumar and Dr Marsh.
@stevegrinstead The symptoms as described by @SusanEllen66 do not match up with Superficial Siderosis.
Ok
@stevegrinstead I noticed that you have suggested this diagnosis to other members on Connect as well. Have you been diagnosed?
For others who may not be familiar, superficial siderosis is a rare chronic progressive neurological dysfunction characterized by classical triad of symptoms consisting of sensorineural hearing loss, cerebellar ataxia, and myelopathy.
Given this is a rare dysfunction, I am wondering if you would consider sharing your experience in a new discussion so that if anyone else can relate, they can share experiences with you.
Yes and yes. Please go to Mayo Clinic/ Steve GRINSTEAD. I will do all that I can.
Yes
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