Cerebellar Stroke - experience/treatment/recovery

I suffered a Cerebellar Stroke in Dec 2015 in my 40s and am interested in connecting with other cerebellar stroke survivors to share our experiences, testing/therapy options, struggles on the path to recovery.

Interested in more discussions like this? Go to the Stroke & Cerebrovascular Diseases Support Group.

@ian7811

Wow, thanks, You’ve been so nice

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ian7811
I just listened to the audio clip included in the website I found, "CBD in Scotland, all you need to know."
It includes many of the names of the companies that produce CBD in Scotland.
Listen to it and have a pen and paper ready to write them all down. Stop the recording if you need time to write it down. It also asks people listening to write their favorite CBD in the comments below.
Go read AND TRUST YOUR GUT!
You will get thru this, one foot in front of the other gets you a long way....Bright Wings
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One of the last suggestions is to call your local pharmacy to get more info.

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@brightwings

ian7811
I just listened to the audio clip included in the website I found, "CBD in Scotland, all you need to know."
It includes many of the names of the companies that produce CBD in Scotland.
Listen to it and have a pen and paper ready to write them all down. Stop the recording if you need time to write it down. It also asks people listening to write their favorite CBD in the comments below.
Go read AND TRUST YOUR GUT!
You will get thru this, one foot in front of the other gets you a long way....Bright Wings
.
One of the last suggestions is to call your local pharmacy to get more info.

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Thanks Brightwings. I’ve got some cyclizine from my doctor to try. I was well prepared thanks to your earlier recommendation. I have also been in touch with an Aberdeen company that sells CBD online and will purchase as soon as they tell me which to buy. I had no known that such a product existed legally in Scotland. Excited to try both products because it’s been a tough week dealing with the nausea. Oh I suspect it’s too late for the face cream to turn me into George Clooney....but I’ll post a picture if it does. Enjoy your weekend.

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I was just sitting here reflecting how different preparing for this monthly gathering of my tribe is, from just one month ago.
(I am 10% Indian).
.
Today I am filled with joy and the zest for living. Preparing to go camping. Baking bread.
.
One month ago I was agonizing over how to say good bye to my tribe members, sons and daughters of my heart.
.
I knew I was dying....
.
Yet, God in his wisdom and mercy and to HIS GLORY only, pulled me thru again. I was prepared to die....... I am so humbly grateful.
.
I hold each minute of my life sacred, I hope you do too.
.
Bright Wings
.
What a difference a month makes!

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@trkuk

Your are welcome, best of luck with your recovery. It does get better.

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Let me know how you get on with the cyclizine.

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@trkuk

Let me know how you get on with the cyclizine.

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Hello trkuk, tried first one mid afternoon yesterday, by 10 at night I was still nauseous, I could feel shaking in my body and I was a little concerned. Not sure if I want to try a second tablet yet. I have to admit despite being 6 feet tall and about 15 stones I haven’t been doing well on changing medication since the stroke 6 months. Even tablets I’ve taken in the past like bendroflumethiazide for HBP caused a reaction. My goodness I took this for 20 years so weird I couldn’t take it now. I couldn’t stomach the alternative to clopidogrel, I think it was dipyridamole and aspirin. When I trialled the latter combo I had to take to bed two hours later, shaking, prickly skin and increased nausea. Most unpleasant and Dr stopped them saying I had experienced some known side effects. Seems size is not an issue when it comes to side effects. I’ll see if I can face up to another cyclizine today. Maybe last nights feeling was an isolated event and nothing to do with the drug. Please don’t let me put anyone off their own trial, I see it’s prescribed for children over a certain age for motion sickness so think its usually ok. If I can face up to another one I’ll let you know but just to reiterate, the unpleasant feeling at bed time may just have been me rather than the drug.

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Got up this morning, was mildly nauseous so took cyclizine. This was about 8am, by 11 the nausea increased to levels similar to the night before, it’s now 2.30 and not feeling great, whether it’s my nausea or a combination of the nausea and cyclizine I can’t say but waiting to see if it wears off a little as the cyclizine leaves my system. I’m concerned that nausea since the stroke hasn’t been as prolonged or so troublesome as the last few days..Think I’ve had my last cyclizine. Oh re CBD. I ordered and then cancelled a supply after I read it can affect clopidogrel, plavix in the US,I believe, in a similar manner as clopidogrel is affected by grapefruit. I spoke with the suppliers of CBD and they suggested clopidogrel is processed in liver whilst sublingual CBD should not affect the drug. I don’t know but I don’t want to risk it. Ok, I’m aware that my observations over the past few days may encourage or discourage others from trying different things and that was never my intention, so, I’ll take a break from the site. Thanks to everyone who has offered encouragement and advice. I’m very grateful to you all.

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Hullo @ian7811,

You’ve been so positive and encouraging, and I was disappointed to read that you want to take a break from Connect! Health comes first and I feel like you’ve found a way to be both successful and productive while taking care of yourself – by sharing your experiences and insights on Connect because your messages benefit many and we can all learn from each other.

May I ask your reason for mentioning, "I’m aware that my observations over the past few days may encourage or discourage others from trying different things and that was never my intention...?” I sincerely look forward to your continued support of other members, and your participation on Connect.

Lang may yer lum reek.(Translation: I wish you well for the future.)

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@brightwings

I was just sitting here reflecting how different preparing for this monthly gathering of my tribe is, from just one month ago.
(I am 10% Indian).
.
Today I am filled with joy and the zest for living. Preparing to go camping. Baking bread.
.
One month ago I was agonizing over how to say good bye to my tribe members, sons and daughters of my heart.
.
I knew I was dying....
.
Yet, God in his wisdom and mercy and to HIS GLORY only, pulled me thru again. I was prepared to die....... I am so humbly grateful.
.
I hold each minute of my life sacred, I hope you do too.
.
Bright Wings
.
What a difference a month makes!

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@brightwings...Funny Brightwings....even while stroking, dying never crossed my mind. Must have given you such a fright. Your attitude, living each day like a sacred event serves you so well. If we seriously consider what a grace each moment is, we tend to do our best. Love more, give more, empathize more, and serve others more. We realize it's not how we serve ourselves in this life, but how we serve others. God must have known what a self focused twit I was, so he sent me 6 kids, 15 grandkids and a hundred animals to care for in this life, so I would learn to love and embrace service. And I've found it is in service that Ive found satisfaction. Ain't that something? lol. So simple, too. Hey....we all have to serve somebody...right? There now. Done pontificating, lol.

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@kanaazpereira

Hullo @ian7811,

You’ve been so positive and encouraging, and I was disappointed to read that you want to take a break from Connect! Health comes first and I feel like you’ve found a way to be both successful and productive while taking care of yourself – by sharing your experiences and insights on Connect because your messages benefit many and we can all learn from each other.

May I ask your reason for mentioning, "I’m aware that my observations over the past few days may encourage or discourage others from trying different things and that was never my intention...?” I sincerely look forward to your continued support of other members, and your participation on Connect.

Lang may yer lum reek.(Translation: I wish you well for the future.)

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Hello Kanaaz, my goodness that’s a grand old Scottish accent you have. It’s 1030 pm here and I’m off to bed with a smile on my face thanks to you and, in honour of your quote, I’m going to read some of Robert Burns work before I sleep just to remind myself that I should be grateful that I still can and that there’s great beauty and so many things to look forward to in this world.
Actually, I can’t resist posting my favourite verse which I would like to dedicate to all our partners, family and friends who have stood by us through thick and thin.
Till a' the seas gang dry, my dear,
And the rocks melt wi' the sun;
And I will luve thee still, my dear,
While the sands o' life shall run.

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@ian7811
Ian, the very first post I read after getting back from camping was you post about dropping silent for a while AND I was coming to kick your Arse, grin.
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Giggling...it would have to be a mighty long leg to reach you over the big pond...
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Seriously, look at the title of this group. What you are going thru on any given day is just part of the story.
It can suck big time...And look at the progress you have made since your brain event.
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Our brains run our entire body. Every system we have is affected good or bad by our brains.
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OUR BRAINS HEAL SLOWLY. Not in our time but its own time...
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Patience....this too shall pass.
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Hold on to this in the hard times, this too shall pass.
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When I am down, and I do get down, I find an album I liked as a teen or young adult and listen to it and allow myself to drift back to simpler times...it works...
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"Simon and Garfunkel in Central park" is my favorite album, John Denver and many others Calm My Soul when I am troubled. What are yours?
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Your poem made me cry. I rejoice in these tears because it means I am still alive and I can still feel.
I had a love like that with my husband of almost 41 years. I miss him still. I honored my tears as they dropped off my face. We can't feel happy all the time...not even me.
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I firmly believe when we honor our tears and difficult feelings it does a number of things.
1. It keeps us healthy cuz we feel the feeling and get it over with. 2. Repressed pain, physical, spiritual or emotional causes further breakdown of our bodies someplace else. I have much personal experience with this from repressed trauma as a kid. 3. It validates our own feelings. That helps us go on to a more positive attitude cuz you are not diverting energy needed for healing.
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The best thing you can do to get your body to heal faster is to take the actions necessary to be grateful for everything, even the pile of offal on your plate today.
Music, poems, travel, art? What makes you happy. Tell us...not so we know and understand but so you can. Tell us everything that makes you glow and the stuff that makes you content. And pisses you off. Its all on one scale...
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Then GET OUT OF THE HOUSE...I don't care what you do, library??? Shopping? Tea and Crumpet? Anything will help. I wish you well, Bright Wings

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