Celiac Artery Aneurysm: Anyone else with same illness?

Jamie, Thank you for responding to my post. Your thought about having another opinion is helpful and I will consider that. Keeping my stress under control has been helpful for handling symptoms and just knowing they will pass. I try to do the usual self care stuff like yoga, walking, eating well, have people to talk with (that is why I was excited to find your group). And if the symptoms don't pass, I guess that is when it is time to get back into the doctor. Now that I know what the symptoms are, they are less frightening but I do still experience anxiety at times. I am curious as to how others handle this 'not knowing'.

Hi Mary @marylisa! Welcome to the group! Thank you for posting.

Being an advocate for your own healthcare should always be number 1. Even though you have an excellent doctor at Emory- you may have luck finding a physician that just happens to have another plan that may work. At Mayo, sometimes before an appointment can be set up, physicians will review medical records and decide if a patient should be seen. Would it hurt to have your medical records sent to a specialist at Mayo or Cleveland and ask to review? Just a thought.

While waiting for other members to reply- what have you found most helpful in handling symptoms? Do you experience anxiety with not knowing what to expect?

I was diagnoses with celiac stenosis and aneurysm in Dec. 2017 after severe abdominal pain and a splenic infarction. I was hospitalized and put on blood thinners. I am not on anything now and seem to be doing well except for occasional discomfort in my left side (upper quadrant). Like you I feel like I am walking around with a time bomb inside and don't know what to expect. It is helpful to read what others are going through. I will have a follow up once a year but even my doctors have not seen a lot of this. My husband wonders if we should go to Mayo or Cleveland for a second opinion even though I have excellent doctor at Emory Hospital. Thanks to everyone for sharing their experience. Mary

Hello. I read your post and found it interesting. I was diagnosed with a celiac artery aneurysm about 5 years ago and it has been stable up until now. I am going in next week for an update (last was in 2015). I was reading up on it again before my appt. and saw your post about your surgery. I was wondering how that was? Difficult? Quick? Quick recovery? Dangerous? WAs it a small incision? I was curious about the options they gave you about the repair. Thanks.

I just want to stop this loose stools to stop

Hello @geor! Welcome to Mayo Clinic Connect. We're happy to have you here.

You will notice that I moved your question to a thread that already exists on Celiac Artery aneurysm. Here you will be able to meet other members and read about information and experiences.

can you tell us, is the information you are seeking for yourself? or a family member?

Any good information of any kind.

I also was just diagnosed with the Rare celiack annurismal artery1 cm this week while at the ER for extreamly HIGH BP and Heart Rate no lower then 99 at rest yet that night it was 124 bpm crazy feeling i have taken 4 diffrent EKG and all test are abnormal my doc put me on a beta blocker yo control the heart rate BP and anxity so this thing don't blow i have a cardiologist apt on monday oct23 also have enlarged bile and pancreatic Ducts along with a pancreatic division. I have a FH mutation called HLRCC with multiply leasions in my kidneys 2 in my spine and had 2 huge ones removed with a full hysterectomy except for overies does anyone else have any other issues that may be linking this

In my case the pain has not come back since the initial onset and discovery. They gave me some morphine and after that it was gone. I had a small amount of discomfort for about a week and then nothing more. They put me on blood pressure medicine so now they only want me to take acetaminophen instead of aspirin. It never seemed to do anything for me prior to this and I previously used aspirin. It seems to be working OK for headaches and such. My last CT showed significant remodeling. so instead of having 80% of the artery swollen and possible blocked its down to 10-15%. They now say they can put in a stint if needed where prior to this the only option was surgery. Follow up CT in December.

Hi @onemind711,

My sincere apologies for the tardy response, but somehow your post slipped past! I'd like to extend a warm welcome to Connect, and thank you for sharing your story.
I really do like the phrase, "special group of people" because you and the Connect community are exactly that: a special group of people who have each other to share with, learn from and find support.

You may be interested in reading this recently published study and case report about celiac artery aneurysms: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5348600/

@onemind711, what do you do to get relief from the pain when it occurs? Only if you would like to share, may I ask if about your most recent appointment?