Celiac Artery Aneurysm: Anyone else with same illness?

Was in the hospital for a bladder polyp biopsy last week and he said basically the same thing... Mine is at 1.6 but told me to just get scans yearly, which I do anyway due to my bladder polyps..

Your observation regarding the inconsistencies among Doctors regarding how to treat Celiac Aneurisms troubles me as well. The inconsistencies are probably related to the rarity of the disease. The UCLA vascular surgeon I consulted told me that nothing should be done until the aneurysm reaches at least 1.6 cm and he doesn't expect that I will ever have it addressed. I was also told to live my life normally and have a CT every once in a while.

thanks for the reply.. But yes he does know it's a CAA.... I've seen numbers all over the place but most of the data I read say they will go in around 2.5 CM..

I think you may want to get a second opinion. He may be thinking of aorta aneurysm. My vascular surgeon will operate at 1.5. CAA is much more rare. Good luck.

I was also diagnosed with a Celiac Artery Aneurysm in May... I had my left kidney removed in 17 and then a surgical hernia repair this past October.. My CT scan BEFORE the hernia repair showed nothing.. This may when I had a follow-up CT scan showed a 1.6CM celiac aneurysm... Came out of nowhere. I have no symptoms either.. What I find odd though is the difference in the size of what Dr.'s consider a time to intervene.. That is the most distressing part to me.. My Dr. told me that 1.6CM is to small and he wouldn't suggest I do anything.. So at this point we will monitor with biannual CT scans and I go and live my life... I ain't gonna worry about it.. BTW I am 64 and WAS a smoker..

I am new to this Mayo site, and happy to find this subject Celiac Artery Aneurysm! I'm 61 and have BEEN very healthy and active! Diagnosed in Feb with the Celiac here at Mayo Scottsdale after unusual high blood pressure. I'm concerned reading the sizes here: @randy1950: Dr "says if it got to be 1.5 cm they would start to talk about repair." I am in the wait and see period and these scans were my first showing 5 aneurysms (I thought most concerning from dr. notes, "Mild-moderate ascending aorta dilatation (diameter 41 mm at mid level). And much worry about the brain aneurysm, since my only health symptom has been headaches! Anyway, to keep on the topic here, my report says, "Mild ectasia of both common iliac arteries. Maximum diameter of the left common iliac
artery is 16 mm. Diameter of the right common iliac artery is 15 mm." I have a Neuro CT again 3mths from diagnosis- end of July, but no mention of the Iliac and incidentally renal also. Anyone else out there suspected of a Connective Tissue Disorder?
And yes to others also, life changing! These strong blood pressure meds slow life way down, which is a must, to avoid rupture. And will not be able to run, and even afraid yoga gets heartrate up too much. Anyway, just curious about those who have had stents or procedures, as no mention on my end of that yet, and at what size they did surgery for Iliac? Grateful to have found this, and sending healing vibes to all!! Janet

I am worried alot too. The first one was dissecting and immediate surgery. This time by the time I see the surgeon it will have been 3 weeks. I am told that is fast. I agree with you that when your stomach hurts you worry. My stomach has hurt since before the first diagnosis and now that i have a second one (which i was told i would be good and never have to worry about it again!) I am so worried. So stressed over it. I dont know whether to wish for surgery (where recovery was so terrible that I told people if I had to do it again...I probably wouldn't have surgery!!) Or to wish for the wait and see approach 'where I will live in constant worry as to be active or not. I was 46 when I had my first one and now I am 55 which might make it more risky for me.

I am sorry that you are so young and have to deal with this.

Hello! Thanks for telling your story. I hope all is well. My aneurism was embolized in 2016. I am still worried it can reoccur. My stress is constant. I'm in my 40s. I was always active but now I'm scared of doing any activity to my abdominal area. My doctor sees me once a year but she too has no experience with the diagnosis. I take it day by day but once I feel pain on my right side I'm reminded of it.

Hi! I hope all goes well for you. I didn't know they did the "watch and see" with any dissecting anuerisym. How do you hande the waiting? I guess because I had to have immediate surgery the first time that it causes me apprehension while I wait on them for answers.

@ewillard
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