Celiac Artery Aneurysm: Anyone else with same illness?

I will be seeing a Vascular Surgon April 28th to see what he thinks. He has worked with the Mayo Clinic in the past. Just happens to only be 100 miles from me. I will update what he tells me I need to do. The VA has authorized this to be looked into. Mark

I have a 14mm celiac artery aneurysm on a 7mm artery and found by a CT I have Gastropareses also and GERD I was on Prilosec for about 10 years way to long! Was going to have the Wrap to solve it but a snowstorm happen and it got put off. I was told I could get off the Prilosec after the operation. So, I decided to do it ahead of time since over the 10-year period I had been on way too many drugs that were not fixing anything? My GERD got under control once off the Prilosec so I stopped the operation since they said it may not work and could cause more problems. I am pretty upset about all the wrong things done to me over the years like being treated for COPD and not having it. On 3 inhalers till I was so sick I gave up and quit all my drugs and then got a lot better. Doctors are not happy with me but I feel the same about them right now. This Gastric problem was so bad with all the Small Intestine Bacterial growth's and just more antibiotics to solve it. Those have gone away now I breath so much better, but the chest pain is still there? I use Lidocaine for it and swallow it sometimes 3 times a day for the pain. I got off the 7.5 Hydrocodone's 4 times a day they had me on for pain due to all the problems it caused!! I feel the celiac artery aneurysm is the cause of my pain or MAULS just living in a Rural Area I was blown off when they found it and said to dangerous to fix and we will watch it. Then they forgot about it. I have a new doctor I will see doon and a 100% Disabled Veteran with PTSD too so the care I have got on the inside and outside has been substandard to say the least. They have cut a duct on my Pancreases and were surprised I got better so fast but it was because of all the Dreon I was taking that I stopped. It was not needed another drug they were trying. I am scared to have them treat me anymore over all this. Filled a complaint and was told this is how we do stuff to find answers. Well, the celiac artery aneurysm to me may be the whole problem I so not want to wait for it to burst and going to try to have it looked at again by the new doctor. I am 70 years old 5' 5" and 130 lbs I lost 30 lbs in a year once from 150 lbs not eating right. Now off the Prilosec I can eat better just wish they said do that on and how to do it. I started taking the pills apart and making them smaller for many weeks till off them. That worked but cold turkey was horrible to do but this worked without the acid overload. I read a lot on this, and I know it is rare, but the pain is a problem. They have looked inside me both ends many times and see nothing wrong? It is time for the celiac artery aneurysm to be corrected and a real doctor to deal with it that knows what to do. Been a long post but so has my journey to get better! Was hoping to hear those others have gone thru what I have here so I joined. Thanks for any help. Mark

Had a scare BP jumped up to 163/120 then 171/111 saw the doctor 2 days later. I have Nitro Pills for the next time. Also dealing with Diabetic problems too that I'm trying to control with my diet. Not sure if those were real high BP but the chest pain was really bad and worried about my Celiac Artery blowing out. There setting me up for another CT to see if it is getting bigger.

One thing I left out was I have had what I thought was 4 Heart Attacks and was told later it was GERD? I know what GERD feels like this was the most chest pain I have ever felt in my life! I stayed up for 3 days afraid to sleep and went to the ER 3 times in a row only to be told it was in my head because I felt OK there??? I wonder if the celiac artery aneurysm happen at that time? It was not seen before this and I have had many CTs looking for things before this? I had real good MRIs for the Pancreas problem looking for things, so I find it hard they just missed it. Not sure if getting a celiac artery aneurysm is supposed to be really painful but no other reason for the bad pain was given. This is why I want to know more and have it looked at again. Thanks Again Mark

I have a 14mm celiac artery aneurysm on a 7mm artery and found by a CT I have Gastropareses also and GERD I was on Prilosec for about 10 years way to long! Was going to have the Wrap to solve it but a snowstorm happen and it got put off. I was told I could get off the Prilosec after the operation. So, I decided to do it ahead of time since over the 10-year period I had been on way too many drugs that were not fixing anything? My GERD got under control once off the Prilosec so I stopped the operation since they said it may not work and could cause more problems. I am pretty upset about all the wrong things done to me over the years like being treated for COPD and not having it. On 3 inhalers till I was so sick I gave up and quit all my drugs and then got a lot better. Doctors are not happy with me but I feel the same about them right now. This Gastric problem was so bad with all the Small Intestine Bacterial growth's and just more antibiotics to solve it. Those have gone away now I breath so much better, but the chest pain is still there? I use Lidocaine for it and swallow it sometimes 3 times a day for the pain. I got off the 7.5 Hydrocodone's 4 times a day they had me on for pain due to all the problems it caused!! I feel the celiac artery aneurysm is the cause of my pain or MAULS just living in a Rural Area I was blown off when they found it and said to dangerous to fix and we will watch it. Then they forgot about it. I have a new doctor I will see doon and a 100% Disabled Veteran with PTSD too so the care I have got on the inside and outside has been substandard to say the least. They have cut a duct on my Pancreases and were surprised I got better so fast but it was because of all the Dreon I was taking that I stopped. It was not needed another drug they were trying. I am scared to have them treat me anymore over all this. Filled a complaint and was told this is how we do stuff to find answers. Well, the celiac artery aneurysm to me may be the whole problem I so not want to wait for it to burst and going to try to have it looked at again by the new doctor. I am 70 years old 5' 5" and 130 lbs I lost 30 lbs in a year once from 150 lbs not eating right. Now off the Prilosec I can eat better just wish they said do that on and how to do it. I started taking the pills apart and making them smaller for many weeks till off them. That worked but cold turkey was horrible to do but this worked without the acid overload. I read a lot on this, and I know it is rare, but the pain is a problem. They have looked inside me both ends many times and see nothing wrong? It is time for the celiac artery aneurysm to be corrected and a real doctor to deal with it that knows what to do. Been a long post but so has my journey to get better! Was hoping to hear those others have gone thru what I have here so I joined. Thanks for any help. Mark

Hello @tallbeachbum

As it's been a while since you last posted, I was wondering how you are doing. Have you found a doctor, outside of the VA, who can provide an opinion on your aneurysm?

I hope you are feeling well.

Hello @tompatrick1234 and welcome to Mayo Clinic Connect!
I appreciate your follow-up with Jen about her surgery.

Did a diagnosis of celiac artery aneurysm bring you to Mayo Connect? Please post as you are comfortable doing so.

I look forward to hearing more from you.

Hi Jen how are u doing.I no its been awhile but I just want to know how the surgery was?hope I hear from you.God bless

I am just seeing this but ironically I too was diagnosed about the same time. They did not operate because the aneurysm was too small. I havent had insurance so I have just let it ride. Can you tell me how you are doing?

Ok great , that was my plan as well. Thank you Kevin