Celiac Artery Aneurysm: Anyone else with same illness?

@colleenyoung I was recently diagnosed with CAA, 1.9x1.9x2.1 cm, so I am also right at the surgery/wait border also. The condition is still very rare, but...

The good news is there are more recent studies, and that non-invasive surgery is being used increasingly. I will post the links once I finish going through the archives here.

Best to all,

David

Hello everyone. It has been very informative to read all the posts on celiac aneurysms. Three years ago I went into the er with severe stomach pain. Found out that I had a dissection in my descending artery and three blood clots. They also found an aneurysm of my celiac artery that measured 1.5cm. Nobody has spoken to me about the aneurysm. Ugh! Was back in er this past Friday after almost passing out twice on Thursday, combined with severe stomach and back pain. Found out that I now also have systemic vacuities. My stomach is always hurting, more so if I eat. Have lost almost 35lbs in the last six weeks. Currently have surgery scheduled for October to repair dissection (if I can hold out that long). Waiting to hear from Mayo this week on getting a second opinion. Thanks again for all of your posts. Nice to know I’m not alone in this.

My Stress Test will be soon and that one will tell them a lot. I read about one and probably won't pass it since I have a hard time walking up hill without pain and my heart rate, BP getting high. Stairs wipe me out fast, so this is what they need to see.

You are making progress, @challengergt. You are ruling out some causes and coming up with others.

I look forward to hearing about your continued discoveries!

OK Got my Chest X-Ray, Blood Tests, EKG, Thyroid Test ect back. There all great no highs or off charts but one. In fact, my GFR is better was 43 Stage 3B for a long time now above 60 normal. Kidneys are happy not on 10 drugs anymore! This is great news on my Kidneys!! But my Thyroid Level is High "TSH 7.07 u[iU]/mL" and I need to look into that. Cholesterol is perfect so my diet is great and 22% Body Fat. Waiting on one more Adrenal Gland Test any time now. I will keep you informed on how this is all going.

Hello @challengergt

I'm so happy that you posted the update after your appointment, This cardiologist appears to be proactively working on your behalf. I'm sure that you feel more confident in finding a solution.

I'll look forward to reading more updates as you go through this process. Do you have any scans or other tests scheduled?

Well, The Cardiologist has done all kinds of Blood Tests, X-Ray and physical exam too. Prescribed Amlodipine at a low dose first for a start to see if it helps. Agrees on me stopping all the Meds and figuring what the problem is. Testing Adrenal Gland and other things. It is a start others have not done yet. Now waiting to see/hear results. More updates as they come in.

My Celiac Artery is 14mm should be 7mm but there saying not big enough to fix yet. Seeing a Cardiologist Doctor tomorrow about all this.

What is it you have that's 14mm? I so hope you get the help and treatment you need.

I had the double blood test. Also I have the gene. You have to have that for the autoimmune disease. The allergy just gives you a temporary bowel problem. When I look back over my 72 years before the test I see all the symptoms . I always wondered why I had sickly times. I started out with constitution as a very skinny slow growing child. I would be exhausted after any time of exertion. I even had the enamel wear off my teeth. Had to have all crowns at 40. The first major symptom I noticed was the huge bloating like I was pregnant. As a adult I now have osteoporosis, even though I lifted substantial weights for 40 years and no one in my family has it. I have arteriosclerosis and had a 4 inch shunt in my thigh. Then there is peripheral neuropathy as well. I have had pancreatitis, all the doctors said I must be a drinker. And my gallbladder was nothing but a stone when removed. I have extreme Gerd. My digestive system does not work well and my bowel and rectal area do not coordinate. All of these are the result of living with malnutrition and not digesting food for my body and parts to grow and function right. I am one of the 30% who do not get complete relief from Going GF. I do not think I need the small intestine endoscopy to prove I have it. The Celiac leaves patchy areas of the intestine injured and a doctor needs to know the specific spots to get the samples. Since no Dr. I have been to in 11 years knows about the disease I don’t trust their testing. I am now having a very bad and painful time with rectal pain, probably caused by straining to alleviate constipation. I am in bed in pain waiting for an appointment with Colorectal Doctor who knows about anal fissures. They have made me wait 10 weeks and I can’t take pain med. The ER doctor knew nothing about Celiac and could not understand the problems I have. I waited 10 hours for nothing.
If I did not mention the Celiac Foundation web site they know the latest research.