Mayo Clinic Connect
Has anyone used CBD oil or anything similar for use in relieving Neuropathy?
Liked by elained
Sounds like you work for the company.
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Liked by Chris Trout, Volunteer Mentor, klaus, mikecranny
@gfisher100 Good morning. I have been using some version of topical ointment with CBD oil for several years. Some work better than others. The only type that is very messy is anything with coconut oil. I am experimenting right now with a 3:1 THC to CBD. It is working very well on hands, wrists, and arms. I also use it on my Myofascial knee problem. I was doubtful at first because of the high concentration of THC. My patient counselor said that it has been delivering good results. Any of the medical marijuana products work better than the lidocaine compounds, for me.
Hi Chris I have small nerve neuropathy and going to try cbd oil with coconut oil what would you recommend Joe thanks
Where do you purchase this oil? I have nerve pain and the narcotics arent working…
CBD can be purchased through the internet and mailed to you. However, at present, CBD can only use the mail (legally) if the THC is >0.3%. Personally, I have used CBD for about a year for nerve pain. I used CBD to get off of oxycodone. There are many suppliers. Do your research. It can be very confusing.
Chris sorry I got your response removed.I can see after thinking about it ,It would give preference of a company over another. Thanks
Do you have good results from the cbd oil?
I have been using CBD made here from cannabis and am told that it is much better than CBD made from hemp. This CBD contains about 5% THC, not enough to notice. Its relieves the pins/needles feeling in my feet.
I am interested if you use an oral application or more of oil in solution that you rub on your feet. I would like to get more relief from pins/needles in feet that wake me up at night. Thanks
Liked by John, Volunteer Mentor
Hi Dean @deankmn, I would like to welcome you to Connect. I'm tagging @artscaping who I think can offer some suggestions for you on an CBD oral application or one that you rub on your feet.
Thanks for the foam roller suggestion in your private message for my lower back ache. I actually found one on Amazon that says it replicates Myofascial Release Therapy type massage.
posted by nkhan@sarah_leanne
My name is Nazir Khan. I am working for the UN as an international civil servant and am currently based in Harare, Zimbabwe.
In August 2017, I began to experience gradual onset bilateral symmetrical discomfort of my feet, which could be described as a heavy feeling. Gradually this progressed to a burning sensation along with numbness and pins and needles. My feet are very sensitive to touch. Since then the symptoms have been constant, and they have affected my ability to mobilize freely. I am no longer able to exercise. It is now 18 months later and my symptoms have not resolved. The symptoms of burning/tingling pain and altered sensation are rapidly progressing.
Since the onset of my symptoms, I have seen a large number of doctors in countries all over the world and have had a very large number of tests performed. My most recent assessment was done by Mayo Clinic Rochester.
There has been some conflict in opinion. I was initially told that my symptoms were possibly the result of spinal stenosis caused by degenerative disc disease. To fix the problem, I initially considered stem cell treatment, but ultimately a decision was made to undergo a course of two rounds of spinal platelet lysate injections in a clinic in Colorado.
However, according to the aforementioned more recent assessment in Mayo Clinic, my diagnosis appears to be a small fibre neuropathy.
I have not tried any medication yet but my symptoms are deteriorating rapidly. I am finding it increasingly difficult to walk because of the constant burning sensation, severe numbness and pain.
I am wondering whether my condition can benefit from the pain cream you mentioned in your post on Mayo Clinic Connect and if so how can I get it in Zimbabwe.
Hello folks – @nkhan1958; @johnbishop; @pfbacon,; @sarah_leanne – I was diagnosed with neuropathy at Mayo Clinic in Rochester a few years back and have the numbness, ultra sensitivity, tingling, burning and pain. I was prescribed Gabapentin and only take that at night because I can't function during the day if I take as much as they want me to. I also take the Gabapentin for neck and back pain. It helps me sleep, but not sure if it does anything for the pain and I'm 99% sure it has some bad side effects, which I HATE!! On top of Mayo suggesting I have my fourth EMG, they recently suggested I start taking Lyrica, which I refused. I don't know about the rest of you, but I can't handle another EMG. Its got to be the worst procedure ever known to man. Anyway, I have been doing tons of research on alternatives to prescriptions for neuropathy and found some good info on Alpha Lipoic Acid for it. I ordered some from one of the reputable vitamin companies I purchase many of our vitamins from and started taking it a couple days ago. I am thinking it might take a bit to get into my system and start working, but I will keep you all posted on my progress and whether it helps or not. I am a federal employee and was told I'm not allowed to use CBD oil products, more specifically if they contain any THC, which from what I am reading, is the only kind worthwhile using. I retire in about 21 months, not that I'm counting. 🙂
Hi @pjfrahm, welcome to Connect. Thanks for sharing. I also was diagnosed with idiopathic small fiber peripheral neuropathy at Rochester Mayo Clinic. I only have the numbness so there was no drug treatment prescribed since there are not any available. I take supplements also to help with the numbness. It seems to have stopped or at least slowed down the progression of the neuropathy for me. R-ALA is one of the supplements I take also. You can read my story and find the links to how I found what has helped me here:
I retire from my second career of 21 years at the end of this year…but I'm not counting ☺ Good luck on your retirement! It's good to do your research.
Liked by Lisa Lucier, Connect Moderator
FYI — from what I have heard from fellow PN-ers, R-Alpha Lipoic Acid is better (more effective) than just Alpha Lipoic Acid (without the R)
Mayo has never really given me any answers on the cause of my neuropathy as I've asked if it could be nerve damage from spinal fusion I had in 2002. I never had any issues with my feet prior to that time. They claim it isn't and I'd have to have another EMG (NOPE!!!) to diagnose for sure. I'd rather just play the guessing game if they haven't given me an answer after 3 prior EMG's, why would one more make any difference. BTW, my husband thinks I'm nuts because every night when I get home from work, I sweep our kitchen, entryway and dining room. I can feel everything, tiny bits of sand, salt and crumbs and they actually hurt. Guess only someone with neuropathy issues would understand. He could always save me the trouble and do it himself. (Now, THAT's FUNNY!!!). 😀
Dang, wish I'd known that before I ordered 4 bottles. Next time for sure I'll include the R!!
@pjfrahm – This is the R-ALA that I purchase from Amazon…
You might want to check out the following discussion also as an alternative treatment for pain.
> Groups > Neuropathy > Myofascial Release Therapy (MFR) for treating compression and pain
@johnbishop, Good deal!! Thank you!!
I use CBD Isolate which I imported from China to Australia. It has zero THC but treats my identical symptoms very well. While not eliminated the symptoms of CIPN have been reduced my 90%. We are now running Government monitored clinical trials in Aus and I have joined that program.
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