Mayo Clinic Connect
Has anyone used CBD oil or anything similar for use in relieving Neuropathy?
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@mandyschneider0 – that is unfortunate your treatment options for peripheral neuropathy in your head region are more limited due to seizures. Do you have epilepsy or a seizure disorder, or are they concerned about the possibility of seizures due to treatment?
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yes they are concernedThat it will cause a seizure so that's why I can't do my normal shots and stimulation of nerves to wake them up.
Liked by Lisa Lucier, Connect Moderator
@mandyschneider0, @johnbishop Good morning. John has asked me to share some of my experience with you. I have used only medical cannabis for pain control of my SFN for several years now. To keep it simple in response to your questions about the dosage and the relief time, the relief is determined by the type of cannabis you use. Concentrate in a vape can bring relief immediately especially when the pain level begins to ramp up and create anxiety which leads to more pain, then more anxiety, etc. However, it doesn't last more than an hour or so depending on the dosage strength and the number of draws from the vape battery itself.
Tinctures take longer to begin working because they go through the digestive system. Holding the dropper amount under your tongue initially does work best. Depending on the dosage combination of CBD to THC, you can expect to feel emotionally calmer and happier as well as pain-free for several hours. So, my personal routine is after meals and before bedtime. The folks at the dispensaries will help. In some states, they have special pharmaceutical counselors to help get you started on the right track. I have posted frequently about cannabis use for pain management including links to helpful sites online. You may find more info there. My experience leads me to believe that the research for medical cannabis is progressing and the result looks promising. Be safe, be well. Chris
PS……..if you have the tingling needles in your hands or feet, a 3:1 CBD/THC has been more helpful than lidocaine compounds or essential oils. I use P&B Releaf Balm.
The procedure are usually due for my hands and feet could cause seizure 4 my head so that's why they won't do this shots and the stimulation for it. That's why I've been doing CBD oilwhich works for 5 hours and then I have to do it again.
So I looked up PA's medical marijuana program (appears more inclusive for potential patients), and it looks like they have quite the range of dosage forms that NY doesn't have, especially actual dried plant. I have no idea how familiar you are with marijuana so I apologize if the detail I'm going into is unnecessary (dried plant is what one would normally think of when you hear marijuana, but with the advent of different extraction processes that produce different oil, waxy, buttery, and harder [think malleable jolly rancher] 'shatter' substances that can be smoked or vaporized, the actual 'buds' of the plant that Cheech and Chong smoked are now commonly referred to as flower. After a cursory review of PA's site, I didn't see anything that specifically outlawed smoking it (actually combusting the plant material), but instead said 'for administration by vaporization or nebulization,' (oil would be used in a nebulizer similar to those used by patients with different respiratory disorders, whereas vaporization uses a 'vaporizer' which heats the plant or oil [depending on the vaporizer some can only accommodate one, while others have special chambers to vaporize both] to a point where THC, CBD, and other cannabinoids and beneficial terpenes are literally turned into vapor [think boiling], but without being so hot as to ignite the plant itself and produce noxious smoke). Inhalation is generally considered the fastest and most concentrated way to consume marijuana (edibles are a different story that I admittedly don't fully understand; 'pot brownies' are known to get people uncomfortably high with bad paranoia if taking to much or if you aren't used to marijuana), although smoking is the worst for your lungs as you can imagine, and vaporization is still not fully researched… since it doesn't contain the combustion products it's considered safer, but the heated vapor can irritate your throat and lungs after prolonged use (it is possible to combine a vaporizer with a water pipe [bong] or other apparatuses so as to cool the vapor and help remove any oily/tar like residue from the vapor). From what I understand, in NY, the oil is pre-filled into single use cartridges built into vaporizers that is unique to each dispensary so there isn't the ability to utilize additional paraphenrnalia or specialized high end vaporizers. Tinctures (in the pharmaceutical compounding sense) use ethanol to extract the active components into a concentrated liquid. Tinctures, pills, 'liquid' (it doesn't specify anything about it, so it's too vague for me to know what the exact dosage form is) and oil should all be able to be taken orally. And of course the topicals you would just apply to the affected areas (this could be difficult if you have a restricted range of motion or areas of pain in your back where you can't reach. Theoretically you could have someone apply it for you with gloves on (I'm not sure if caregivers are allowed to 'administer' any of the products to you [example: pharmacists are not legally allowed to take a pill out of a patient's bottle and put it in their mouth if they have physical difficulty, but nurses and doctors can]). Bottom line, if you want the healthiest option, avoid inhaling. This stance is controversial as many people believe vaporizing is healthy, however, inhaling trace amounts of oil can theoretically cause a specific type of pneumonia and/or cause damage to the anatomy of the lungs depending on how long you've used it. There is not enough research out there yet to give a very good picture of the long term effects of vaporizing. It is one of the most popular methods of delivery out there right now, so it is up to you. Again, since it doesn't actually combust the plant, it's not like smoking it or a cigarette with the additional noxious fumes from the burning plant material, and there are ways to filter/cool down the vapor.
Your best bet is to discuss the options available to you with your doctor, along with the specific reasons/symptoms you're using medical marijuana along with your goals for treatment with it. He or she should be much more knowledgeable on the topic than I, although as I said before, this is relatively new, and long term studies on health impact and adverse effects simply don't exist as federal funding is a gray area since it's still considered a DEA schedule I narcotic (street drug with no medicinal value and high abuse potential).
The other major important factor to consider is the strain of medical marijuana you get, along with the percentages of THC and CBD. THC is the psychoactive component, but also is attributed as being a pain killer and relieving spasticity. In NY, three oil preparations must be available at each dispensary (though the exact concentrations are not regulated and vary from one to another), 1. High THC, Low CBD; 2. High CBD, Low THC; and 3. 50% THC, 50% CBD. Since plant material is available in PA, many different strains with different concentrations of each could possibly be available; you'd have to ask your doctor and the dispensaries. High THC can cause anxiety and paranoia in some people, whereas CBD is good for anxiety. Marijuana comes from Cannabis indica, Cannabis sativa, and varieties of hybrids of the two. Indicas are generally known for a relaxed 'high', with sedation and strong appetite stimulation. Sativas are known for a more 'heady high' while being mood elevating and giving the user energy (marijuana users who use during the day typically are using sativas or sativa dominant hybrids). Once you figure out your goals of treatment and symptoms you want to relieve, you can work with your doctor, dispenser, and even research different strains (and learn about marijuana) on websites like leafly dot com.
Any THC containing product will still have the same rules as recreational marijuana including that you cannot and should not operate a motor vehicle, or heavy machinery while under the influence or while you suspect you may still have some affect from it. Common sense things.
Medical marijuana has provided many patients with amazing results and relief and resulted in a much greater quality of life. The pain-killing, anti-anxiety, anti-depressant, stress-relieving, anti-inflammatory, sedating and sleep inducing, and appetite stimulating effects can be quite drastic (in an obviously very positive way) in patients with serious health conditions where other treatments have failed.
I hope this provided some initial information for you to at least know what to research and talk to your doctor about! Good luck with your treatment and I hope it works well for you! If you would, please let me know what you end up trying… I have yet to get my card here in NY as the actual product is too expensive for me. I am very interested in how it works out for SFN!
Wolf , I think I mentioned that I had back surgery , of course it’s been difficult with oxycode with withdrawal. I went off cold turkey on Christmas Day . For a month buy the back ache and also hip pain I now Attribute to the with drawl. I just saw a new drug called lucemyra can you give me some info with your back ground getttib very difficult
My original questions is this CBD oil actually providing any relief of the tingling etc. Is there a particular brand better then another.
I see many commercial products coming on claiming to be better than the other.
Anyone using a specific brand and its total over all effect. Is this used eternally or is taken internally?
I only get from a medical marijuana dispensary to ensure pure ingredients. Because it's not regulated by the FDA any company can claim whatever they like as well as put whatever ingredients they want into it. Everyone seems to be jumping on the CBD bandwagon which transfers to lots of counterfeit concoctions that a.b.c store might try to sell. I can't stress enough, "Buyer Beware".
I tried 3 diff cbd products from one company, didn't help and made me stoned and very uncomfortable.
My neurologist referred me to a company called Vireo , they are in several states.
I not only tolerate this new "brand", I have received very good pain relief
I first tried their middle 50/50 , in vape, was fine, not irritating at all, but not enough relief.
The next time I ordered a next level stronger oil, and the same vape.
Significantly decreased my pain.
I'm not pain free, I'm able to manage what's there better.
Wanted to let u know as it seems different suppliers in medical marijuana have completely different effects. Hope this helps
get topical. Topical works best IMO and experience which makes sense given that peripheral nephropathy is such a sensory issue. i'll also do oral elixirs cut with THC at a tolerable ratio to cut the cost of straight CBD and also to help me sleep. But only at night. I've been able to tolerate a 1:1 ratio (THC : CBD w/o experiencing any uncomfortable high effect from the CBD.
@gfisher100 Good morning. I have been using some version of topical ointment with CBD oil for several years. Some work better than others. The only type that is very messy is anything with coconut oil. I am experimenting right now with a 3:1 THC to CBD. It is working very well on hands, wrists, and arms. I also use it on my Myofascial knee problem. I was doubtful at first because of the high concentration of THC. My patient counselor said that it has been delivering good results. Any of the medical marijuana products work better than the lidocaine compounds, for me.
Can CBD balm be still used during chemotherapy or immunotherapy? My dad has neuropathy due to the chemo and want to find out if he can still use the balm during the chemo. Hope it should not interact badly since balm will be applied on the skin. Thanks.
I swear by CBD products. I use two. One is a rub on salve, and the other is drops to calm. They are spectacular. If you want to know about specific products. please let me know!!!!
The people who work the dispensary in your state will
Know what you can try of what strains they have on hand . Mine has rick Simpson / RSO oil and it works well for helping me sleep and get comfortable
have you tried Taking it by a liquid like hot cocoa or tea it will taste much better and you probably won't get sick from it.
I have been using 30:1 CBD/THC the first time I used it for nerve pain after thumb surgery it relied my pain almost immediately.
Where do you purchase this oil? I have nerve pain and the narcotics arent working…
It is legal for medical use in my state . They have dispensary’s here . If your state has them you would have to find out from them what strain will help that they have on hand . Our dispensary is not reliable to keep same strain stock . Do ask them
OK,I give up……. what does CBD stand for ?
CBD stands for CannaBiDiol one of the components of Terpene resin of cannabis.
I have read about the benefits of CBD oil and want to try it for my neuropathy; however, I am in the education field and am subject to random drug screenings and tests. Online, there are mixed reviews about whether you will fail a drug screening if you are using topical CBD oil. Does anyone have direct experience with this? Have you passed or failed a drug screening after using CBD oil topically? I cannot afford to lose my job for many reasons including that if I lose my job, I lose my health insurance. If I test positive, I am also subject to losing my teaching license (and thus my career). If a physician gives you a prescription for CBD oil (knowing that it does not require a Rx and that it is readily available online), does this protect you legally if you fail a drug test? I am on medication for my ADHD and have to do drug screenings every 3 months in order to continue with my prescription for that with my primary care physician as well. Honestly, because I am not a drug user, I never asked a lot of questions about the screenings and simply jumped through the hoops, but I also wonder if I test positive if they will discontinue that medication as well. So many considerations…..
Personally, I would much rather use CBD oil than other alternatives, but am concerned.
I really think if you have doctors notes prescribing CBD, you cannot get into trouble. There are laws protecting the disabled, as well. I also do not think you would fail a drug test on CBD oils, because you are not ingesting the active part of the hemp plant. I would even talk to your principal and be honest. Also, I have terrific CBD salve and drops I swear by. They save me. If you want to know more, you just order on line. Very reputable. The salve is a godsend. I was a teacher also. Good luck, my friend. Lori Renee
I was very interested in your comments about the salve you are using. I have not had much luck with the ones available at the approved dispensaries here in Mass. Would you mind providing the address/website so that I might take a look.
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