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Cavernous sinus meningioma
Hello, I have recently been diagnosed with a right cavernous sinus meningioma that has wrapped around the carotid artery and is pressing on the optic nerve and 2 other cranial nerves. Even though I live in a large city, I feel very limited by the physicians whom I have seen so far. They first said, I will see you after surgery. Then inoperable due to the area and surrounding structures and I am finally getting a second opinion where I have found out that radiation to or around the optic nerve is very dangerous. Has anyone had surgery in this area successfully or did you forgo surgery for radiation and how did that effect your vision and optic nerve ( I have double vision and severe headaches , as well as, a few other symptoms like ringing in the ears, face pain etc. I would appreciate any comments and experiences, thank you
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Thank you for your reply. I hope that you at least felt like you got good and compassionate care. That is what seems lacking in the Seattle area where I initially was diagnosed. I go for the second opinion today to a cancer center in a much smaller town (though the mother hospital is based out of Seattle). Just that they were so compassionate and kind has already made me feel better. Are you saying surgery, initially made things worse? And are gradually getting better? Did you also have to have radiation? Best wishes
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1 ReactionGosh...I wish 8 had advise for you but I dont know about this tumour...do they say if it is cancerous or not ? I have similar symptoms but these were caused by the surgery that was needed to remove a tumour in the 4 th ventricle... all I know is that it's been a hellish life changing year but slowly slowly getting better...I'm in New Zealand and presume ypu are in the states...I thought the best treatment was there... goodluck and post how its going
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