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julieannarcand (@julieannarcand)

Cavernous sinus meningioma

Brain Tumor | Last Active: 3 days ago | Replies (40)

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Thank you for your reply. I hope that you at least felt like you got good and compassionate care. That is what seems lacking in the Seattle area where I initially was diagnosed. I go for the second opinion today to a cancer center in a much smaller town (though the mother hospital is based out of Seattle). Just that they were so compassionate and kind has already made me feel better. Are you saying surgery, initially made things worse? And are gradually getting better? Did you also have to have radiation? Best wishes

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Replies to "Thank you for your reply. I hope that you at least felt like you got good..."

Hi @julieannarcand and welcome to Connect. I'd like to bring @jrt26, who has also been treated for a meningioma in the right cavernous sinus, into this discussion. You may also be interested in this discussion with members who have a meningioma involving the optic nerve:
– Optic Nerve Meningioma patients https://connect.mayoclinic.org/discussion/optic-nerve-meningioma-patients/

There are also a couple of discussions about gamma knife radiation:
– Gamma Knife Radio Surgery for Meningioma https://connect.mayoclinic.org/discussion/gamma-knife-radio-surgery-for-meningioma/
– Gamma knife for meningiomas https://connect.mayoclinic.org/discussion/gamma-knife-for-meningiomas/

How was your appointment for a second opinion, Julie?