Care and community for post transplant patients when you return home?

Posted by revkathy49 @revkathy49, Nov 14 4:14pm

If you are a kidney transplant recipient and have been released to a local nephrologist, have you experienced the lack of a transplant team and possibly a nephrologist that is not familiar with post transplant medical care? In my experience, my dialysis clinic staff was definitely a vital part of my care that stayed on top of every lab result, etc. Currently, my local nephrologist has no idea how to regulate my tacrolimus level.

Interested in more discussions like this? Go to the Transplants Support Group.

Profile picture for princessdeewee @princessdeewee

Hello everyone.
I am a post liver transplant patient.
This last September I celebrated 5 years of a second chance to life.
I am grateful to be here so I can read your daily experiences and learn from them. Later on as I get acquainted, I would like to participate by inquiring a few things. Until then I will be here just reading and learning.
Thank you all.

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@princessdeewee
Hi and Welcome to Connect! Congratulations on your 5th year liver transplant anniversary. Please feel free to join in any of the conversations with comments or questions - anytime.
I look forward to hearing about your experience with your liver transplant.

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Profile picture for Rosemary, Volunteer Mentor @rosemarya

@princessdeewee
Hi and Welcome to Connect! Congratulations on your 5th year liver transplant anniversary. Please feel free to join in any of the conversations with comments or questions - anytime.
I look forward to hearing about your experience with your liver transplant.

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Thank you.
It seems something went wrong with this site. They refuse my user name and
password. Unfortunately I will not be able to join in. 🙁

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Profile picture for princessdeewee @princessdeewee

Thank you.
It seems something went wrong with this site. They refuse my user name and
password. Unfortunately I will not be able to join in. 🙁

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@princessdeewee, You are signed into Connect. I know that because I am seeing/ and reading/ and responding to your reply 14 hrs ago. I also see that you have made 3 other responses.
Here is information about Connect that should be helpful to you for getting started.
- About Connect: Who, What & Why: About Connect
https://connect.mayoclinic.org/blog/about-connect/tab/aboutconnect/
What is a current question about liver transplant that you are interested in?

REPLY
Profile picture for Rosemary, Volunteer Mentor @rosemarya

@princessdeewee, You are signed into Connect. I know that because I am seeing/ and reading/ and responding to your reply 14 hrs ago. I also see that you have made 3 other responses.
Here is information about Connect that should be helpful to you for getting started.
- About Connect: Who, What & Why: About Connect
https://connect.mayoclinic.org/blog/about-connect/tab/aboutconnect/
What is a current question about liver transplant that you are interested in?

Jump to this post

@rosemarya
Thank you very much.
I changed my password and I am back in track. 🙂

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