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Care and community for post transplant patients
If you are a kidney transplant recipient and have been released to a local nephrologist, have you experienced the lack of a transplant team and possibly a nephrologist that is not familiar with post transplant medical care? In my experience, my dialysis clinic staff was definitely a vital part of my care that stayed on top of every lab result, etc. Currently, my local nephrologist has no idea how to regulate my tacrolimus level.
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Hello and welcome! 27 yrs liver transplant here - I never relegated the tacrolimus monitoring to any doctor other than my transplant team. I found Mayo to be very agreeable to providing lab orders to be taken outside of Mayo (we have Sonora Quest and LabCorp), then the results go back to the ordering MD and I continue to have bloodwork including tac monitored by Mayo. You are right, monitoring tac is a super super specialty that doctors don't learn in med school and don't really have much opportunity to deal with. It is such a critical medication, your life literally depends on its regulation of your immune system. Good for you for asking the question!