Anyone living long-term with DIPNECH on lungs?

I have written on this form before. I am 71 and was diagnosed with very slow growing neuroendocrine tumors on my lungs 8 years ago. No treatment at all . Two years ago I had lower left lobe removed as one small tumor changed . I saw my oncologist yesterday for my 6 month blood and scan / X-ray. I was very happy and fortunate to get a stable , no change report . My encologist said I could go on like this forever ( although I live in constant fear ). Is there anyone who has this neuroendocrine dyptic tumors that is leading a long life with little or no treatment. My only problem is I get out of breath when I climb stairs or any upgraded hill. I can live with this. Just want to know if anyone else has been living a long time with this. My doctor called this a condition I could live with rather than a cancer ( even though it is )