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DiscussionAnyone living long-term with DIPNECH on lungs?
Neuroendocrine Tumors (NETs) | Last Active: May 13 7:20pm | Replies (77)Comment receiving replies
Replies to "Hi rogo yes I live with diagnosis of DIPNECH & lung neuroendocrine cancer (Typical tumor)confirmed by..."
@milly1 hi 😊just seen your from Ireland my first time seeing someone from Ireland on this ❤️
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@milly1
I was having some issues with flushing on one side of my face at night but discovered it was a histamine intolerance (most likely due to NETs or octreotide) so I just cut out the fruits causing it and it stopped. Trial and error.