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Hi rogo yes I live with diagnosis of DIPNECH & lung neuroendocrine cancer (Typical tumor)confirmed by lower left lobectomy 2012 ..so long term. The cough which was totally exhausting and so severe causing umbilical hernia did quiten down somewhat after surgery however gradually became chronic again. I was put on lanreotide injection every 28 days initially, certainly helped calm things down. I experience flushing more often now and my injection is 21 day intervals now to try help with that. I’m 66, live in Ireland

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Replies to "Hi rogo yes I live with diagnosis of DIPNECH & lung neuroendocrine cancer (Typical tumor)confirmed by..."

@milly1
I was having some issues with flushing on one side of my face at night but discovered it was a histamine intolerance (most likely due to NETs or octreotide) so I just cut out the fruits causing it and it stopped. Trial and error.

@milly1 hi 😊just seen your from Ireland my first time seeing someone from Ireland on this ❤️