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DiscussionAnyone living long-term with DIPNECH on lungs?
Neuroendocrine Tumors (NETs) | Last Active: May 13 7:20pm | Replies (77)Comment receiving replies
Replies to "I'm 65, in 2016 I started having a cough that would not go away. I was..."
@mbarreras Hi and welcome to Mayo Connect. I too have lung scarring that has been attributed to valley fever. I also am a resident of Arizona. @californiazebra is the most knowledgeable person that I know in regards to DIPNECH. Her input, as well as others, will be a tremendous help to you as DIPNECH is very rare. Please share how your pulmonologist appointment goes. We are here to help.
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@mbarreras
Nodules left behind by valley fever was one of the incorrect guesses doctors had when they first discovered my 50+ nodules. I think your life is going to change for the better if they start you on octreotide or lanreotide. Keep us posted.