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Profile picture for mbarreras @mbarreras

I'm 65, in 2016 I started having a cough that would not go away. I was diagnosed with Valley fever, which is something you can get in Arizona, although I had 3 tests that were always negative. I had MRs done that showed I had several spots on my lungs, but they were small, and the doctors were not concerned with them. Last year I was told I had carcinoid tumors, two small ones that had grown over time were removed, which was cancer.
I have had the chronic cough since 2016. Monday, I was told that I might have DIPNECH Lung disease, which would be the cause of the chronic cough and the carcinoid tumors. I’m going to a Pulmonologist tomorrow. I feel hopeful.

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Replies to "I'm 65, in 2016 I started having a cough that would not go away. I was..."

@mbarreras
Nodules left behind by valley fever was one of the incorrect guesses doctors had when they first discovered my 50+ nodules. I think your life is going to change for the better if they start you on octreotide or lanreotide. Keep us posted.

@mbarreras Hi and welcome to Mayo Connect. I too have lung scarring that has been attributed to valley fever. I also am a resident of Arizona. @californiazebra is the most knowledgeable person that I know in regards to DIPNECH. Her input, as well as others, will be a tremendous help to you as DIPNECH is very rare. Please share how your pulmonologist appointment goes. We are here to help.