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CAR-T Cell Therapy: Introduce yourself and connect with others

Posted by Colleen Young, Connect Director @colleenyoung, Sep 17, 2018

Welcome to the CAR-T Cell Therapy group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people who have experience with CAR-T cell therapy or are caring for someone on CAR-T cell therapy. There are so few people who have experience with this new cancer immunotherapy. Together we can learn from each other, support one another and share stories about living with cancer and coping with the challenges of treatment.

Let’s chat. Why not start by introducing yourself? When did you or your family start therapy? How are you doing today?

Interested in more discussions like this? Go to the Bone Marrow Transplant (BMT) & CAR-T Cell Therapy Support Group.

utravelone8671 | @utravelone8671 | 1 day ago
In reply to @kirkwilliams2049 ""Complete Metabolic Response" are my 3 favorite words in oncology. I just had my 1 year..." + (show)
@kirkwilliams2049

"Complete Metabolic Response" are my 3 favorite words in oncology. I just had my 1 year PET scan after CAR T on Thursday. It is magic! I had relapsed and there was a node on my duodenum that would not respond to chemo. So I was put on a CAR T clinical trial. 30 days later I was clear. I know the side effects can be scary but they are very low probability. They kept me in hospital for 2 weeks for observation. And they know how to fix whatever happens to go wrong. In my case that was nothing. If fact, I learned a new(to me) programming language when I was in there. So do what you need to do and get on with your life. Please take my best thoughts and best wishes for a prompt recovery with you!

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which trial were you on @kirkwilliams2049 ? Thanks for sharing! Glad to hear you went all clear!

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