CAR-T Cell Therapy: Introduce yourself and connect with others

Dear Bonnie,

My husband was in a clinical trial for Car T for multiple myeloma and CLL patients on November 5. This trial took place at Princess Margaret Hospital in Toronto Canada. The first thing I’d say, is that clinical trials are awesome. You get care over and above any standard care that I have ever seen. The second thing I’d say is that this therapy has been a miracle for my husband. He had come to the end of the line for any traditional treatments, and this trial was the only thing on the horizon, given the fact that he was getting sicker every day with a relapse. While we do not know how long it will last, right now there’s no residual disease to be found and this is in less than two months. He had his Car T therapy on November 5 with no side effects in the hospital or out of the hospital. None of the side effects that we were worried about, like CRS. The only thing that he experienced was fatigue for the first month. And after that, he started feeling stronger and stronger every day. We are two months post CAR T and my husband is out on the tennis court again.