Can you get lymphedema if you only had sentinel node removed?
I was speaking to the director of the cancer center where I am getting treatment and expressed my concern about getting lymphedema. I had bilateral breast cancer with lymph nodes removed. She says you do not get lymphedema from only having the sentinel nodes removed. If that is true I am going to kiss the ground. Please comment.
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Thank you...surgeon doing limited dissection... Not complete one but still need drain.
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1 ReactionHi Catherine,
I might be totally misunderstanding your question but I had a sentinel lymph node excised when I had a lumpectomy and had no drainage tube or any healing issues. The residual scar, a year later, is nearly invisible and looks like a fading kitty scratch.
If you are only having one or a few nodes removed, it might be a relatively easy procedure? If you're having all the nodes removed in that area, ask the surgeon or oncologist for as much support as is available, including post-surgery physical therapy. That can make a big difference and potentially the chances of edema and discomfort while you recover. Sending best wishes to you and, really, all of us in the frontlines.
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1 Reactioncindylb...
That is such a good idea. I wish I had thought of that before I received both my 5th covid vaccine and my high dose flu shot in the same arm. My arm was sore for 3 days.
I have had full breast radiation so I stay away from the radiation side for vaccines, blood draws and blood pressure checks.
Thanks.... I will remember your suggestion.
Katrina
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3 ReactionsI am scheduled for dissection. of axillary mode as one has cancer in it...enlarged.... Had IDC in 2016 so this is recurrence. Am really scared. Can anyone who had this surgery tell me your experience...and how did you handle the tube drain...??? My lumpectomy was easy .
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1 ReactionI had sentinel node biopsies in the pelvic region. I've had two vaccinations and two boosters all in my upper arm and did not get lymphedema. Maybe it depends on where the lymph nodes were biopsied?
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2 ReactionsI had 6 nodes removed and three were positive. The Onco Type Dx test score was very low, and I luckily skipped chemo and went straight to proton radiation. I had a problem with cording but never have had a problem with lymphedema. I had a great surgeon. PT quickly helped the cording problem. Hope you do well and avoid that larger issue.
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4 Reactions@dlmdinia
Check also with your Physical Therapy Dept for stretching exercises for your arms which help clear out the lymphatic system. I've been through "axial webbing" several times (clogged lymph veins) and this helps immensely.
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4 Reactions@callalloo
Same thing happened to me but with my who urologist explained in a phone appt that my imaging procedure (done under sedation by his fellow urologist) was normal. I listened patiently to him and then told him I had the results in my hand as well as the imaging pictures and it was nothing but normal! That's when he actually looked at the imaging studies and apologized. I searched out and found another urologist who resolved the problem surgically. ALWAYS check and double check...doctors are human and make errors just like the rest of us!
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6 ReactionsI had lymph nodes removed on the right side. I was told no needles, no blood pressure on that side. I wore a medic alert bracelet warning against this, but no one ever noticed it. I now just tell everyone "other arm." No one has ever been anything but nice. Many are in the habit of asking "where would you like it" first. Because of the radiation I went through, I was told I'd probably get lymphedema in 10 years. I do get some swelling if I overdo or sleep too hard on that arm.
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8 ReactionsI just love when doctors are unable to confront their own human imperfection. A male friend spent 15 minutes listening to a doctor describe the several things wrong with him in an uninterruptible monologue while staring at his X-rays. When the doctor was finished with the bad news, my friend suggested that that was probably all wrong.
The doctor condescended
to point out that he is a doctor and my friend is not and therefore his opinion was less important than the doctor's. My friend said the doctor is still wrong and he can prove it. The doctor asked how he can prove it and my friend walked over to the X-ray to point out that it wasn't his name on it. He suggested that the doctor use his superior medical education to find the X-ray with my friend's name on it before diagnosing my friend's medical challenges.
I pointed out to my friend that, had he been a female patient, the doctor would likely have been even more annoying and dismissive...and his wife seconded that appraisal.
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