Bone cancer discovered

Posted by wolfhound1966 @wolfhound1966, Mar 16, 2020

Just had a MRI and discovered bone cancer…..just informed a few days ago and was told to see an oncologist……will make an appointment ASAP…..what can I expect??

@colleenyoung

@danielad, your experience of going to ER during these times of COVID-19 would be a good discussion to start in the COVID-19 group. Here's how:
1. Go to the COVID-19 group https://connect.mayoclinic.org/group/covid-19/
2. Add a short descriptive title like “Going to ER for non-COVID emergency during these times"
3. Type your message, telling your story. End with a question for others to add their experiences too.
4. Click CREATE DISCUSSION

Thanks for doing this.

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@colleenyoung — I have started the discussion entry you recommended, but didn't continue …. Still the nausea issue. I will do it! Dee

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@danielad

@hopeful33250 — Hi Teresa. Thank you for the message. I am recovering, but feel pretty poorly still. I am still nauseous, mostly in the morning. My 46 year old daughter made the comment to her brothers – "Oh my! Mom is Pregnant!" Too funny! And no, I look very young, but I would make History if I were! 😀

This afternoon, I have a "Telemedicine" appointment with my Radiation Oncologist. My first such appointment! @colleenyoung will be very proud of me! So I downloaded "Zoom.us" and I am ready to go.🙂

Thank you Teresa! Stay healthy!
— Dee

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@danielad

Good to hear from you, Dee! That is great that you started the new discussion, thanks for doing that.

I hope your telemedicine appointment goes well this afternoon. Will you post again?

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@gingerw

@wolfhound1966 Good morning! Checking in with you to see if you have heard from your doctors regarding the CT guided biopsy from last week/ How did it go? How can we help you today?
Ginger

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This is what I have going on!

Codes
Metastatic adenocarcinoma involving skeletal bone with unknown primary site

Of course I googled it.,,…doesn’t look good but have an appointment with an oncologist next Thursday. A plum sized mass….. hell of a run but now time to regroup. Anyone know about my problem? I’m hanging tight here in Portland Oregon.

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@wolfhound1966

This is what I have going on!

Codes
Metastatic adenocarcinoma involving skeletal bone with unknown primary site

Of course I googled it.,,…doesn’t look good but have an appointment with an oncologist next Thursday. A plum sized mass….. hell of a run but now time to regroup. Anyone know about my problem? I’m hanging tight here in Portland Oregon.

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@wolfhound1966 Quite the mouthful for the diagnosis, isn't it? I found this article by the Nat'l Institute of Health https://www.ncbi.nlm.nih.gov/pubmed/9865824 that may give you some insight. Apparently, there may be further testing to determine the primary cause of the adenocarcinoma, so treatment can be tailored to your situation.
Have you been able to determine the background of the oncologist you will see? One of the best cancer centers near you is OSHU Knight Cancer Institute [which appears to have at least 3 different campuses near Portland, not sure which one has a sarcoma unit].
Will you let us know what the oncologist recommends to you, please?
I am tagging @merpreb into this, as she is a member and Volunteer Mentor in the Lung Cancer group, where there seems to be several with adenocarcinoma. She may have some insight for you.
Ginger

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@gingerw

@wolfhound1966 Quite the mouthful for the diagnosis, isn't it? I found this article by the Nat'l Institute of Health https://www.ncbi.nlm.nih.gov/pubmed/9865824 that may give you some insight. Apparently, there may be further testing to determine the primary cause of the adenocarcinoma, so treatment can be tailored to your situation.
Have you been able to determine the background of the oncologist you will see? One of the best cancer centers near you is OSHU Knight Cancer Institute [which appears to have at least 3 different campuses near Portland, not sure which one has a sarcoma unit].
Will you let us know what the oncologist recommends to you, please?
I am tagging @merpreb into this, as she is a member and Volunteer Mentor in the Lung Cancer group, where there seems to be several with adenocarcinoma. She may have some insight for you.
Ginger

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@wolfhound1966 – Good afternoon. Welcome to Mayo Clinic Connect. It's not easy to hear that you have cancer. It feels like being hit over the head with a sledgehammer! How are you besides the pain in your hip? When did your pain begin?
https://www.mayoclinic.org/diseases-conditions/carcinoma-unknown-primary/symptoms-causes/syc-20370683

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@merpreb

@wolfhound1966 – Good afternoon. Welcome to Mayo Clinic Connect. It's not easy to hear that you have cancer. It feels like being hit over the head with a sledgehammer! How are you besides the pain in your hip? When did your pain begin?
https://www.mayoclinic.org/diseases-conditions/carcinoma-unknown-primary/symptoms-causes/syc-20370683

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The pain was in my left hip area and was progressively worse everyday……just recently had my first radiation treatment a long one as they used heavy dosage rather than 10 short ones. Gonna hit it hard again on Monday and go from there…,.. having a port installed on the 23rd for chemo……just crazy as I was golfing and fishing in November and December! Dang!!

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@wolfhound1966

The pain was in my left hip area and was progressively worse everyday……just recently had my first radiation treatment a long one as they used heavy dosage rather than 10 short ones. Gonna hit it hard again on Monday and go from there…,.. having a port installed on the 23rd for chemo……just crazy as I was golfing and fishing in November and December! Dang!!

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@wolfhound1966 Glad to hear from you, and sorry you have had so much pain. I am holding out that you will be back golfing and fishing in the future. I hope you are satisfied with your oncology team? How can we help you today?
Ginger

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@wolfhound1966

The pain was in my left hip area and was progressively worse everyday……just recently had my first radiation treatment a long one as they used heavy dosage rather than 10 short ones. Gonna hit it hard again on Monday and go from there…,.. having a port installed on the 23rd for chemo……just crazy as I was golfing and fishing in November and December! Dang!!

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How are you doing, @wolfhound1966? Any side effects from the heavy dose radiation treatments?
Good luck with the port tomorrow.

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@colleenyoung

How are you doing, @wolfhound1966? Any side effects from the heavy dose radiation treatments?
Good luck with the port tomorrow.

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Hanging in there just some hot spots…..pain subsiding enough that I am able to stop taking….it was making me sick to my stomach. Port in for two days now….next meeting is on May 4th…….the journey continues! Social distancing making this thing worse Haven’t hugged our kids or grands for quite some time!! Sucks!!

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@wolfhound1966

Hanging in there just some hot spots…..pain subsiding enough that I am able to stop taking….it was making me sick to my stomach. Port in for two days now….next meeting is on May 4th…….the journey continues! Social distancing making this thing worse Haven’t hugged our kids or grands for quite some time!! Sucks!!

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@wolfhound1966 I agree that the world without hugs is hard. I’m glad to hear that the pain is diminishing. Will you start chemo at the next appointment in May?

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@colleenyoung

@wolfhound1966 I agree that the world without hugs is hard. I’m glad to hear that the pain is diminishing. Will you start chemo at the next appointment in May?

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Starting Chemo on Monday the 11th….couple of hours with one batch then they insert another IV attached to a pump which I leave in for 46 hours then return and they will remove…….I will do this Twice a month for three months then a pet scan to see how it's working!! My new norm!

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@wolfhound1966

Starting Chemo on Monday the 11th….couple of hours with one batch then they insert another IV attached to a pump which I leave in for 46 hours then return and they will remove…….I will do this Twice a month for three months then a pet scan to see how it's working!! My new norm!

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@wolfhound1966 Have you ever been someone to take and do written accounts of your life? It would be interesting to journal as you go through this chemo, and be able to look back at it later and what you went through. There may be some rough days ahead like there have already been in the past. But you have a good head on your shoulders, and you will prevail! Is there anyone nearby to help support you on this journey? I'm glad that with the appointment just this last Monday that they are starting the chemo so quickly, so you don't have to wait around.

I am looking forward to hearing from you in a couple of weeks, as you get into this new routine. I hope that you let us know how we may be able to support you!
Ginger

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