Bone cancer discovered

@colleenyoung and all -- I wrote a reply which "disappeared" in thin air ... Operator error I would guess, but really frustrating!
I apologize for my "lack of presence" but have been very ill with severe dehydration brought on by a viral gastroenteritis. Was in the hospital, but was dismissed as soon as I could stand up! I didn't know you could have such terrible labs, EKG, CT scans, etc. and still be alive!

I was, and I am. Take heart everyone; there is light at the end of this, and many other tunnels!

Colleen, you are right, at least in Virginia, NO VISITORS in any hospital or surgery center is the mantra. My husband had to leave me at the front entrance of the ER and picked me up at the Hospital Main Entrance when I was dismissed, 2 days later! It makes for a VERY lonely experience. Of course, most of us don't go to a hospital ER unless it is an emergency. Still, though happy they could try to make me feel better, finding yourself "totally" alone is not a great feeling.

We need to consider perhaps how to discuss this particular aspect of going to any ER or any hospital and being psychologically prepared to be alone, for hours and/or days. It's a new experience for most everyone. I am not one requiring a lot of company at all; I had my cell (with my charger) and kept in touch with my family. BUT it was a psychological challenge.

Particularly so when suddenly, every cell phone in the ER, and every speaker began to blare out the strident sound of an alert. I just happened to have a doctor by my side ... The looks of fear and confusion I saw in her eyes were unmistakable ... I quickly looked at my phone and it did not show the usual "This is a Test of ...". It was THE real thing. The Governor had just ORDERED the entire Commonwhealth's (non-emergency essential) population to stay home and all medical facilities and personnel to prepare for a ramp up of COVID-19 patients. I felt I was stopping traffic!

Again, I apologize for being "absent" in the past few days. I couldn't control nausea or vomiting and reading made it worse, of course. Before I try to post this, I also wanted to add that I am going to have a series of tests for "potential" bone cancer ... All of which will be postponed for a while, given the situation we are in. So, I am not going to be terribly useful at present. That said, I send my best wishes to @wolfhound1966 and anyone else who may be struggling with a bone cancer diagnosis.

I have taken another nausea pill ... but it is best if I stop reading, writing, and even "thinking" and take another nap.

Stay in the game. Don't panic, it is going to get better in a few weeks.

-- Dee

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@danielad Hello Dee,

I just wanted to check-in and see how you are feeling. Are you still having a lot of nausea?

When you feel up to it, I'd love to hear from you.

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@danielad, your experience of going to ER during these times of COVID-19 would be a good discussion to start in the COVID-19 group. Here's how:
1. Go to the COVID-19 group https://connect.mayoclinic.org/group/covid-19/
2. Add a short descriptive title like “Going to ER for non-COVID emergency during these times"
3. Type your message, telling your story. End with a question for others to add their experiences too.
4. Click CREATE DISCUSSION

Thanks for doing this.

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@hopeful33250 -- Hi Teresa. Thank you for the message. I am recovering, but feel pretty poorly still. I am still nauseous, mostly in the morning. My 46 year old daughter made the comment to her brothers - "Oh my! Mom is Pregnant!" Too funny! And no, I look very young, but I would make History if I were! 😀

This afternoon, I have a "Telemedicine" appointment with my Radiation Oncologist. My first such appointment! @colleenyoung will be very proud of me! So I downloaded "Zoom.us" and I am ready to go.🙂

Thank you Teresa! Stay healthy!
-- Dee

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@wolfhound1966 Good morning! Checking in with you to see if you have heard from your doctors regarding the CT guided biopsy from last week/ How did it go? How can we help you today?
Ginger

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This is what I have going on!

Codes
Metastatic adenocarcinoma involving skeletal bone with unknown primary site

Of course I googled it.,,...doesn’t look good but have an appointment with an oncologist next Thursday. A plum sized mass..... hell of a run but now time to regroup. Anyone know about my problem? I’m hanging tight here in Portland Oregon.

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@wolfhound1966 Quite the mouthful for the diagnosis, isn't it? I found this article by the Nat'l Institute of Health https://www.ncbi.nlm.nih.gov/pubmed/9865824 that may give you some insight. Apparently, there may be further testing to determine the primary cause of the adenocarcinoma, so treatment can be tailored to your situation.
Have you been able to determine the background of the oncologist you will see? One of the best cancer centers near you is OSHU Knight Cancer Institute [which appears to have at least 3 different campuses near Portland, not sure which one has a sarcoma unit].
Will you let us know what the oncologist recommends to you, please?
I am tagging @merpreb into this, as she is a member and Volunteer Mentor in the Lung Cancer group, where there seems to be several with adenocarcinoma. She may have some insight for you.
Ginger

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@wolfhound1966 - Good afternoon. Welcome to Mayo Clinic Connect. It's not easy to hear that you have cancer. It feels like being hit over the head with a sledgehammer! How are you besides the pain in your hip? When did your pain begin?
https://www.mayoclinic.org/diseases-conditions/carcinoma-unknown-primary/symptoms-causes/syc-20370683

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The pain was in my left hip area and was progressively worse everyday......just recently had my first radiation treatment a long one as they used heavy dosage rather than 10 short ones. Gonna hit it hard again on Monday and go from there...,.. having a port installed on the 23rd for chemo......just crazy as I was golfing and fishing in November and December! Dang!!

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The pain was in my left hip area and was progressively worse everyday......just recently had my first radiation treatment a long one as they used heavy dosage rather than 10 short ones. Gonna hit it hard again on Monday and go from there...,.. having a port installed on the 23rd for chemo......just crazy as I was golfing and fishing in November and December! Dang!!

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