Can someone please help me interepret my chest CT scan in detail?
I had a chest CT Friday; results are "Patchy groundglass interstitial infiltrate in the left upper lobe. No alveolar infiltrate, effusion, mass, nor endobronchial lesion. Punctate subpleural left upper lobe nodule"
Severe allergic asthmatic who moved to Chattanooga, TN a year ago. This is the 2nd time my asthma flare-up has taken me down for a month. My asthma doc already has me on 4 meds, & the first round of antibiotics & steroids did not work, so he sent me to get CT. They are treating it as pneumonia. I'm scared it's worse.
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I have GGNs that were present at the diagnosis of my mucinous adenocarcinoma in 2010. They remain unchanged in almost 14 years.
They can be caused by exposure to chemical fumes, allergens, exposure to a fungus called histoplasmosis, asthma, chest infections like cold or flu, air pollution and more. 95% of them never become a problem. Many disappear on their own, others never change. They are semisolid so it is not possible to get a piece of them during a biopsy.
They watch them though because about 5% will start to become solid which means they are becoming cancerous. I had new ones appear and take 7 years before they started turning solid and 4 more years before one was large enough to biopsy.
Hi Denzie, Thank you so much for your reply! It is helpful to know that they are common and that yours have remained unchanged for 14 years! I have been learning that they are difficult to biopsy and just starting to hear more about new blood biomarker tests (liquid biopsy) that can help distinguish whether or not they are malignant. Have you heard anything about these tests? There is alot of literature that states true GGNs are often over treated and a watchful wait approach is wiser. I just discovered last week I have four GGNs and am only at the beginning of this "nodule surveillance" journey. I'm struggling to think of anything else at this point and mentally this has really affected my life, my outlook, anxiety level, fear of the future, etc. How do you cope with that? Any insight on that issue from you or anyone else who's been dealing with this alot longer than me would be greatly appreciated. I've thought about starting a new post on that issue! Thanks again for your reply. It helps just to have others to talk to about this... The club no one really wants to be in. 🙂 Wishing you good health!
I am in that same situation. I am in watchful waiting with every-six-month CT followups. I have multiple pure ground glass nodules. Becuase of their size/shape/opacity/edges, the surgeon and radiation oncologist have set a path of 6-month CT's for 2 years; anything suspicious arises and we switch to 3-month CD's. treatment would be robot-assisted targeted radiation, great strides are being made in this area. I would like to avoid surgery.
I managed all this better - after freaking out - when I found my radiation oncologist who has been steadfast, and confident & supportive. This does not remove all fear but it helps greatly because I have a plan. At first I did a ton of research and I still do keep up with new treatments. I gained a great deal from a site called Lungevity and the group there offers mentoring and peer relating....s
I have also joined the Lungevity site and found some good information there. I have found this forum at Mayoconnect to be be more active so far. But I think its good to do your homework and stay educated and informed as a part of managing any health issue. Wishing you good health!
We tried a blood biopsy when a couple of my GGNs began turning solid. The outcome was negative as they are too slow growing to shed much DNA or RNA. It took another 4 years before the solid part became large enough to biopsy.
I love the Lungevity Foundation. If you decide to go to the 2025 Hope Summit, send me a pm, it would be great to meet you there.
Thanks for your response, it is more usual for posts to be from people who are in active stages of treatment. I have asked about PET scans, biopsies, etc - not that I really want them - and am told the nodules are too small or too ground glass to show anything further. Even if one/more move towards more solid, the thinking is that a biopsy could lead to a risk similar to surgery....the eventual move would be robotic-assisted targeted radiation - not fun but of course I will do it if I need to....I have found great help from Lungevity and it turned out that my radiation oncologist was one of the founders.
sura
so, can we post pictures here, as I'm used to do
in other forums ?
(v-bulletin , phpbb)
I never saw one , but
below I do see a button :"Add Photo/Files (optional) ,
so I try ....
you can see my enlarged bronchii (bronchiectasis)