Hi, Dell. I really feel badly for you. AML seems to be a really tough thing. I just put it in a couple search buttons, and found a pile of stuff. It seems to be rather closely related to my AL Amyloidosis. About the only truth thing I can say for sure about it is that you will shortly find that you seem to know as much about it as do your doctors. So you must keep learning. Read all the stuff you can find. Books. Videos. Articles. Sign on to the NIH, Clinical Chemicals, Hematology Journal, and anything else you can find from those Google and other search engines. And keep track of your life. In notebooks, computer files, whatever. I wish I could get my local clinic to give me a good horse check every week. BP, A1c, Protein, etc. I could not, so I have done it myself. You can see it at http://bit.ly/1w7j4j8 . And insist your clinic system find you a doc who can help. I eventually called Mayo MN and talked with their alumni office. I asked for any grads who work in my area in hematology or anything else that might work. If they cannot find anyone, call Memorial Sloan Kettering, or University of Utah or whatever. Remember, there is more professional jealousy in medicine than in any field outside of presidential politics. So do not just take someone's word that he or she is an expert in AML. Check it out. And God bless you in your work. oldkarl
Connect
Connect
Like
Helpful
Hug
Hi, Dell. I really feel badly for you. AML seems to be a really tough thing. I just put it in a couple search buttons, and found a pile of stuff. It seems to be rather closely related to my AL Amyloidosis. About the only truth thing I can say for sure about it is that you will shortly find that you seem to know as much about it as do your doctors. So you must keep learning. Read all the stuff you can find. Books. Videos. Articles. Sign on to the NIH, Clinical Chemicals, Hematology Journal, and anything else you can find from those Google and other search engines. And keep track of your life. In notebooks, computer files, whatever. I wish I could get my local clinic to give me a good horse check every week. BP, A1c, Protein, etc. I could not, so I have done it myself. You can see it at http://bit.ly/1w7j4j8 . And insist your clinic system find you a doc who can help. I eventually called Mayo MN and talked with their alumni office. I asked for any grads who work in my area in hematology or anything else that might work. If they cannot find anyone, call Memorial Sloan Kettering, or University of Utah or whatever. Remember, there is more professional jealousy in medicine than in any field outside of presidential politics. So do not just take someone's word that he or she is an expert in AML. Check it out. And God bless you in your work. oldkarl
-
Like -
Helpful -
Hug
1 Reaction