Can Prolia be safely and reasonably discontinued at a certain age?

Posted by kdryder @kdryder, Mar 5 7:26pm

My wife is 85 years old, taking Prolia, and has recently moved to an assisted living facility. It is very difficult for her to travel from the ALF, and she does not wish to do so for any reason. Is there a point at which it is reasonable to discontinue Prolia infusions? (Note: The ALF will not do infusions on site.)

Prolia is destroying me! Macular degeneration in both eyes which retina specialist tells me is from Prolia. Prolia rep says is because of having osteoporosis — but I had osteoporosis long before Prolia and guess who I would believe!. I also have three PAINFUL broken vertebrae sustained when my doc retired and new one couldn't see me right away. This delay of a few weeks in getting Prolia shot resulted in the fractures! So it's bad news if I take Prolia and worse if try to stop!

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@tarmansbks

I took it three times and after the third, I felt like a had a terrible case of the flu which lasted. Aches, pains, upper respiratory. Saw no difference in dexascan so stopped taking it. Have a friend who took 8 and got hives after the last and that ended her journey with prolia. I try to walk and work on balance but I know there is risk of the F word for all of us over 60 (F word meaning Fall). I guess the ALF has rules which precludes staff but you would think that a call to the woman's insurance company, Like Blues on Call that Highmark offers, would be able to help with a solution. I find Highmark customer reps to be exceptionally patient and helpful.

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@tarmansbks After you and your friend stopped Prolia, which osteoporosis treatment did you change over to? I am a kidney transplant patient with osteoporosis and I am looking for my best option. I would love to hear your thoughts?…. I am considering Fosamax?

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@hello1234

@tarmansbks After you and your friend stopped Prolia, which osteoporosis treatment did you change over to? I am a kidney transplant patient with osteoporosis and I am looking for my best option. I would love to hear your thoughts?…. I am considering Fosamax?

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I don't know that Carol is taking anything. She is 88 years old and perhaps feels like it is not worth it. She has minded her husband dying and with covid and isolation, it is hard to think much about the future. I am not at this time taking anything. It's a risk I know but I am seeing a polio specialist in October and will discuss it with him. So many medications may help one thing and exacerbate something else which seems to be my case so often and makes me shy of trying something new.

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