Want to connect with others with Spasmodic Dysphonia: Will you join?

Posted by sguttmann @sguttmann, Mar 25, 2022

I have Spasmodic dysphonia, which is a rare disorder affecting the vocal cords. Only treatment for now is Botox, which does help. Otherwise, I struggle with trying to talk, my voice breaks up when speaking. There are about 4,500 people who are living with this disorder. It can be very debilitating, depressing and frustrating. It affects the muscles in the throat and has a link to the wiring of the basal ganglia. Any help, comments or tried and true self help treatments would be helpful to hear about. Thank you!