1. < Hypertrophic Cardiomyopathy (HCM)

Can Hypertrophic cardiomyopathy cause Sleep Disorder Breathing

Posted by aolaobaju @aolaobaju, Jun 23 11:13pm

I am 63years old with diastolic dysfunction grade 1 and 50% HCM (so my cardiologist says after MRI test) my ejection fraction is 55% I am placed on the following drugs;
Entresto 200mg - morning & night
Carvedilol 12.5ng morning & night
Spironolactone - once daily
Novasc 5mg - night only
I am 161cm tall and 78kg - overweight
I am on cpap pressure between 4-16
My question when I sleep with my cpap on I suddenly wake up as if I am short of breath my pulse goes as high as 110 & if I check my bp it will be over 175/95 my body feel unwell and my bladder full of urine with urge to pee. The bp become normal 130/75 or atimes lower after few .minutes.
My Doctor sent me for another sleep test he said by AHI is less than 5 he said I shouldn't be feeling that way at night bit I kept experiencing this sleep disorder breathing has anyone experienced this before? Can Mayo clinic do better than what my hospital is doing here for me in Nigeria.

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manuelpo | @manuelpo | Jun 24 6:54am

The Mayo clinic doctor should have the best answer for you. If I were you, I would make an appointment with a Cardiologist at Mayo Clinic to make sure all is ok.

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Mentor
Debra, Volunteer Mentor | @karukgirl | Jun 24 9:57am

Hello @aolaobaju, and welcome to Mayo Clinic Connect all the way from Nigeria!
I'm glad you found this online community of others who have HCM just like you.
The most important thing we do here is support each other and learn from each other's stories...but we cannot make medical decisions or guess about a medical issue. That's for your cardiologist or other doctor to determine.

That being said...the Mayo Clinic is the world's leading expert in HCM and treatment of HCM.
People are all different, no two are alike. Not every person with HCM will be exactly like another and each person will have different symptoms associated with their HCM.
It must be unsettling to have these strange and powerful surges of shortness of breath, increased BP and heart rate increases during sleep, even while on CPAP.
It sounds like you were given another sleep study with negative results, but are still experiencing these episodes that make you feel unwell. That must be frustrating!
I confess, I do not know how healthcare in Nigeria works, but have you sought a second opinion?
The Mayo Clinic sees people from all over the world...that's why they are so special.
And you are too.
You may or may not be able to come to the Mayo Clinic in Rochester, MN, but are you able to seek a second opinion locally?
Here's a list of international locations for Mayo Clinic, but I do not see Africa listed:
https://www.mayoclinic.org/departments-centers/international/locations
A lot of times diet and exercise can impact our health in positive ways and is often overlooked as a place to start. Are you able to exercise?
Have you made efforts to gain back your health, such as diet, exercise?

REPLY
1 reply
aolaobaju | @aolaobaju | Jun 24 3:54pm
In reply to @karukgirl "Hello @aolaobaju, and welcome to Mayo Clinic Connect all the way from Nigeria! I'm glad you..." + (show)
@karukgirl

Hello @aolaobaju, and welcome to Mayo Clinic Connect all the way from Nigeria!
I'm glad you found this online community of others who have HCM just like you.
The most important thing we do here is support each other and learn from each other's stories...but we cannot make medical decisions or guess about a medical issue. That's for your cardiologist or other doctor to determine.

That being said...the Mayo Clinic is the world's leading expert in HCM and treatment of HCM.
People are all different, no two are alike. Not every person with HCM will be exactly like another and each person will have different symptoms associated with their HCM.
It must be unsettling to have these strange and powerful surges of shortness of breath, increased BP and heart rate increases during sleep, even while on CPAP.
It sounds like you were given another sleep study with negative results, but are still experiencing these episodes that make you feel unwell. That must be frustrating!
I confess, I do not know how healthcare in Nigeria works, but have you sought a second opinion?
The Mayo Clinic sees people from all over the world...that's why they are so special.
And you are too.
You may or may not be able to come to the Mayo Clinic in Rochester, MN, but are you able to seek a second opinion locally?
Here's a list of international locations for Mayo Clinic, but I do not see Africa listed:
https://www.mayoclinic.org/departments-centers/international/locations
A lot of times diet and exercise can impact our health in positive ways and is often overlooked as a place to start. Are you able to exercise?
Have you made efforts to gain back your health, such as diet, exercise?

Jump to this post

Thanks really appreciate. I am in contact already with Mayo hospital I have requested for an appointment. Hospital infrastructure here in Nigeria are not helpful many of us go outside the country for medical attention. Good hospital lack competent doctors the experts have migrated to Europe and America.

REPLY
1 reply
Mentor
Debra, Volunteer Mentor | @karukgirl | Jun 25 10:23am
In reply to @aolaobaju "Thanks really appreciate. I am in contact already with Mayo hospital I have requested for an..." + (show)
@aolaobaju

Thanks really appreciate. I am in contact already with Mayo hospital I have requested for an appointment. Hospital infrastructure here in Nigeria are not helpful many of us go outside the country for medical attention. Good hospital lack competent doctors the experts have migrated to Europe and America.

Jump to this post

That's wonderful to hear @aolaobaju and I hope you are able to get that appointment.
In the meantime, while you wait for the process to unfold, how do you spend your time?
Are you able to be active?

REPLY
2 replies
aolaobaju | @aolaobaju | Jun 27 3:44pm
In reply to @karukgirl "That's wonderful to hear @aolaobaju and I hope you are able to get that appointment. In..." + (show)
@karukgirl

That's wonderful to hear @aolaobaju and I hope you are able to get that appointment.
In the meantime, while you wait for the process to unfold, how do you spend your time?
Are you able to be active?

Jump to this post

Thanks really appreciate. I do walk for about 90mins every other day. I dont feel dizy. My problem is always at night

REPLY
aolaobaju | @aolaobaju | Jun 27 3:46pm
In reply to @karukgirl "That's wonderful to hear @aolaobaju and I hope you are able to get that appointment. In..." + (show)
@karukgirl

That's wonderful to hear @aolaobaju and I hope you are able to get that appointment.
In the meantime, while you wait for the process to unfold, how do you spend your time?
Are you able to be active?

Jump to this post

I am.also a minister of the gospel. I oversee a zone of church parishes in the Redeemed Christian Church of God

REPLY
1 reply
aolaobaju | @aolaobaju | Jun 28 6:02am
In reply to @aolaobaju "I am.also a minister of the gospel. I oversee a zone of church parishes in the..." + (show)
@aolaobaju

I am.also a minister of the gospel. I oversee a zone of church parishes in the Redeemed Christian Church of God

Jump to this post

Fir the appointment I have sent everything required including my MRI report, the last echocardiogram and CT Anginia I did and report of all blood lab test

REPLY
1 reply
Mentor
Debra, Volunteer Mentor | @karukgirl | Jun 29 11:48am
In reply to @aolaobaju "Fir the appointment I have sent everything required including my MRI report, the last echocardiogram and..." + (show)
@aolaobaju

Fir the appointment I have sent everything required including my MRI report, the last echocardiogram and CT Anginia I did and report of all blood lab test

Jump to this post

@aolaobaju, that's wonderful.
Now the wait begins...and you know He hears your prayers.
I will add mine to yours.
I hope you keep us updated on your situation.

REPLY
1 reply
aolaobaju | @aolaobaju | Jun 29 12:37pm
In reply to @karukgirl "@aolaobaju, that's wonderful. Now the wait begins...and you know He hears your prayers. I will add..." + (show)
@karukgirl

@aolaobaju, that's wonderful.
Now the wait begins...and you know He hears your prayers.
I will add mine to yours.
I hope you keep us updated on your situation.

Jump to this post

Of course I know of a truth the Bible says He was wounded for our transgressions, He was bruised for our iniquities and the chastisement for our peace was upon Him abd by His stripes we are healed. That's Isaiah's prophecies I had been holding on to and my claim ever night. Hospital will only try but God heals. Appreciate

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