I have been on Nubeqa almost 3 years. I always take it with food and within 1/2 hour of being 12 hours between doses. No digestive problems to report. I do experience some brain fog and weakness but I am also on Lupron every 3 mos and have had chronic lymphocytic leukemia for 20 years so it’s hard to say where my symptoms come from. But the combination of Nubeqa and Lupron have kept my PSA and testosterone levels to virtually zero. Also, my prostate cancer had already spread to my liver and bones when I was diagnosed and I’m still alive and kicking ( thought not as long as I used to).
So , to summarize, Nubequa is helping to keep me alive. That’s worth the side effects.
I take a shot every 3 months along with nubeqa. I'm like you I'm thankfully for every day. Do you have any pain anywhere? My psa dropped from 53 to 19.
I have been on Nubeqa almost 3 years. I always take it with food and within 1/2 hour of being 12 hours between doses. No digestive problems to report. I do experience some brain fog and weakness but I am also on Lupron every 3 mos and have had chronic lymphocytic leukemia for 20 years so it’s hard to say where my symptoms come from. But the combination of Nubeqa and Lupron have kept my PSA and testosterone levels to virtually zero. Also, my prostate cancer had already spread to my liver and bones when I was diagnosed and I’m still alive and kicking ( thought not as long as I used to).
So , to summarize, Nubequa is helping to keep me alive. That’s worth the side effects.
I have been on Nubeqa almost 3 years. I always take it with food and within 1/2 hour of being 12 hours between doses. No digestive problems to report. I do experience some brain fog and weakness but I am also on Lupron every 3 mos and have had chronic lymphocytic leukemia for 20 years so it’s hard to say where my symptoms come from. But the combination of Nubeqa and Lupron have kept my PSA and testosterone levels to virtually zero. Also, my prostate cancer had already spread to my liver and bones when I was diagnosed and I’m still alive and kicking ( thought not as long as I used to).
So , to summarize, Nubequa is helping to keep me alive. That’s worth the side effects.
Wow! Three years. I thought I was long at two years. Started when I did chemo, soon after I started Lupron injections. Stopped Lupron after 13 months. So I’ve been on Nubeqa monotherapy for almost a year. Primary side effects include gynecomastia and fatigue, especially in my legs. My PSA has stayed negligible while my T has risen to 350.
No. Just Nubeqa and Orgovyx. My PSA in February was 32 and testosterone in the 5 hundreds
After one month my PSA was 4.1. Testosterone was 5
In June it was .24 and no detectable Testosterone.
So it seems to be working.
HTH
No. Just Nubeqa and Orgovyx. My PSA in February was 32 and testosterone in the 5 hundreds
After one month my PSA was 4.1. Testosterone was 5
In June it was .24 and no detectable Testosterone.
So it seems to be working.
HTH
Well, as they did not get clear margins when they removed my prostate and my PSA is climbing is it is considered metastatic. I've had 3 PSMA scans with the results of "No detecable cancer". So I've got my fingers crossed for the future.
The Scan were done over the past 3 years when my PSA was 22/12 and 32.
HTH
I take a shot every 3 months along with nubeqa. I'm like you I'm thankfully for every day. Do you have any pain anywhere? My psa dropped from 53 to 19.
Wow! Three years. I thought I was long at two years. Started when I did chemo, soon after I started Lupron injections. Stopped Lupron after 13 months. So I’ve been on Nubeqa monotherapy for almost a year. Primary side effects include gynecomastia and fatigue, especially in my legs. My PSA has stayed negligible while my T has risen to 350.
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Are you on shots 2? It may not be my nubeqa making me hot, although I'm on 600mg twice a day
I take a shot every 3 months along with nubeqa. I'm like you I'm thankfully for every day. Do you have any pain anywhere? My psa dropped from 53 to 19.
AMEN!!
Wow! Three years. I thought I was long at two years. Started when I did chemo, soon after I started Lupron injections. Stopped Lupron after 13 months. So I’ve been on Nubeqa monotherapy for almost a year. Primary side effects include gynecomastia and fatigue, especially in my legs. My PSA has stayed negligible while my T has risen to 350.
No. Just Nubeqa and Orgovyx. My PSA in February was 32 and testosterone in the 5 hundreds
After one month my PSA was 4.1. Testosterone was 5
In June it was .24 and no detectable Testosterone.
So it seems to be working.
HTH
That's great!!
Is yours metastatic?
Well, as they did not get clear margins when they removed my prostate and my PSA is climbing is it is considered metastatic. I've had 3 PSMA scans with the results of "No detecable cancer". So I've got my fingers crossed for the future.
The Scan were done over the past 3 years when my PSA was 22/12 and 32.
HTH
Only bone aches and bad fatigue. I wish you well in your treatments.
I wish you the best. Hang in there.