Anyone take new drug Camzyos (mavacamten) for HCM?

I have just joined this forum. I am Canadian with HCM and Camzyos is being recommended for me by my Cardiologist here. I have just been contacted with the pharmacy in my city (Victoria) that now handles this medication. Needless to say I am quite unsure about Camzyos, noting that heart failure is one of the potential side effects! I am researching information online to educate and reassure myself, found this excellent forum and thought it a good place to pose this question to others. I am 71 yrs old and was diagnosed about 5 years ago after a number of afib incidences. Currently on blood thinners, beta blockers and a Rythmodan (disopyramide), which I gather will be unnecessary if the Camzyos works for me. I will be having the necessary ECGs to monitor. Thanks for reading this long message!

Yes, I’m taking it. My co-pay is $35/30 days. In my third month with this Med. At this point, I haven’t seen any changes yet.

Thank you so much! They provided me all the information I needed.

@hazmat1, I suggest contacting Patient Account Services in Billing & Insurance: https://www.mayoclinic.org/patient-visitor-guide/billing-insurance/contact-us

I am trying to find out the codes for my Mayo scheduled tests this July in Rochester and their costs to have an estimate. Tried to leave phone messages and sent several Emails. Maybe I am using wrong contacts. Would you be able to send me in the right direction? Thank you so much!

Yes, I will post the final verdict 🙂

@hazmat1, I'll be interested to hear what you learn after your evaluation and if you'll be starting on Camzyos (mavacamten).

Hello, just had s meeting with my cardiologist this morning about this new med. He is sending me to Mayo to be evaluated for this med.

Hi @captainterry,
I would encourage you to read over other HCMers posts to see if anyone has any advice. You can find the bulk of our members here: https://connect.mayoclinic.org/discussion/hcm-ers-introduce-yourself-or-just-say-hi/
I know @gwenm has mentioned this medication in one of her posts.

I know that physicians have to be enrolled in the CAMZYOS REMS program in order to write prescriptions for you. One physician wrote in Every Day Health, “We’re very excited for our patients about this addition to the toolbox for management of obstructive HCM. It won’t be for everyone — nothing ever is — but it is a very welcome tool,” says Sara Saberi, MD, a cardiologist and assistant professor of internal medicine at the University of Michigan Health Frankel Cardiovascular Center in Ann Arbor. https://www.everydayhealth.com/heart-health/fda-approves-camzyos-for-the-treatment-of-obstructive-hypertrophic-cardiomyopathy/
That might be a good place to start.
Have you talked to your doctor about the possibility of enrolling so they can help you?