Anyone take new drug Camzyos (mavacamten) for HCM?

Lol

Hmmm...Sounds like you're tempting fate with that dbl burger/cheese/bacon/xtra crispy onion rings!!! Maybe put some kale on the burger next time, that way it will be "healthier" 😉
Take care @starbuck41, tomorrow is another day.

Ok so I’m feeling normal now
Lunch/dinner
Dbl whataburger with cheese and bacon, large extra crispy onion rings and a large Diet Coke.
1/2 can of Fresca

500mg metformin
That’s day 1 in the books, ill see y’all tomorrow
Dave

Took my first dose 08:14
Morning weight 269lbs
Had 20oz coffee
Ate 3-4 crackers
No other meds taken, I’m not sure if I feel normal, but I feel different could be in my mind ..it’s been about 4hrs.
I’ll update In comments later what lunch and dinner plus any side effects. Until then y’all have an awesome day.
Regards
Dave

Hi there @irishpeaks , that was good to hear you don't have an issue with elevation. I live literally 500 feet above sea level, and every time I went to higher elevations for hikes to Mt. Lassen, Mt. Shasta or Mt. Anything I suffered! Short of breath, dizzy, gasping for air...I knew something was wrong, and it kept getting wronger! There are so many forms and causes of cardiomyopathy, it is like a catch-all phrase. Hypertrophic Obstructed Cardiomyopathy is a bit different than non-ischemic cardiomyopathy, but I am glad to hear you do not have issues with elevation. I feel bad you have a 'full block', that has to be limiting and always in the back of your mind. Hopefully the meds you are on are helpful. Colorado has some BIG mountains. Like the real deal mountains. Are you able to get out and enjoy their beauty? 8500 ft., I bet you got some snow this year!

I see a beautiful "puppy" in your picture is watching you too! Yes, please keep posting, even the 'boring' stuff. That way you can compare with the others using this same med and share experiences. That's what Mayo Connect is all about 🙂
Until tomorrow...

It arrived today, late due to bad weather, I will start this tomorrow at
0800, prolly have a salad tonight for dinner so my diet will be healthier..
but so there’s a record for y’all and me, I want to give all the facts of my journey ..diet, meds, physical activity.
Noticed side effects..
It may be boring so please bare with me, I figured the more concise the better for those who are on the fence about taking this approach: so I’ll see y’all tomorrow morning
Dave

I lived around 8500 ft. In elevation in Colorado and didn’t have any issues with the elevation. I have non-ischemic cardiomyopathy with a full block and am on several meds, obviously. Hopefully your new meds work and you can enjoy those outstanding mountains! Keep fighting the good fight…

Yay! That is great news! I will be anxious to hear! Hopefully it will act quickly for you as it did for me and some of the other people in this group! So exciting! 🙂

The WWII Mine Sweepers had a motto: "Where the fleet goes, we've been!"
That's you! The first Veteran to go. I am very excited for you. Wow, so many eyes on you now...no pressure!
It sounds like they have a good plan going forward. If all goes well, will this be written up in the US Veterans and Military Magazine? Can you picture yourself on the cover? What a great interview it would be!