Anyone take new drug Camzyos (mavacamten) for HCM?

Good morning! First of all, thank you for your service! That is really exciting that you will be the first veteran to take Camzyos. I was really nervous too. I read as much as I could, joined this group etc. I was feeling so awful. My shortness of breath was totally debilitating. I am 58 and have always been very active. HCM stopped me from doing many of the things I love to do. Although I was scared, I was also hopeful that this could be the answer to help me feel better. I have now been on Camzyos for a month and am having my first ECG this afternoon. It is honestly a miracle what this drug has done for me. I am back to being able to take walks and not worry even walking from place to place. No more dropping off at restaurant or store doors, because I couldn't walk very far. My only side effects have been feeling kind of dizzy at times. I am getting my life back! I wish the same for you!

Did you find out?

Hello
I am a 59yr old male 6’4 260lbs, I am going to be the first veteran in America to get this drug through the VA, many cardiology departments across the globe are watching my case to evaluate and establish for other veterans. I’ve seen war, but the warnings on the packaging is making me nervous. Any advice?
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This is such good news! I just saw my cardiologist today and came away feeling very lucky. Some of his Camzyos patients are not getting noticeable results - he feels that I am really fortunate that I am doing so well on this medication. Nice to read your updates Kelli 🙂

Good morning! My husband and I just walked 2 1/2 miles, and I didn't have to stop at all! I feel so good-Like normal! I am soooo thankful that Camzyos is working. I feel like I am getting my life back! 🙂

I am feeling good today. 🙂

You and I are on the same schedule. My 1st Echo since starting this drug is also next friday. I'm feeling great, so I'm sure it will be fine.

Good morning-I have been feeling so great-but then yesterday I got really dizzy and felt like I was going to faint. I am a teacher and this happened in my classroom. The nurse came and had me lay down on the floor with my feet on a chair. My blood pressure was a bit low, but then went up when I sat up. I still feel a bit dizzy today. I hope it stops soon! This is my 22nd day.

Absolutely it is a step forward, my cardiologist gave me an option of open Heart surgery but I opted for this medicine to try in first place. In three weeks I will have my first ECG. In the long run if LVOT gradient ratio improves and Regurgitation disappears then I will be considering myself lucky that I started taking Camzyos.

Hi! I am also 58 and was having your exact trouble. I started 3 weeks ago and cannot believe how good I feel! I am now able to walk too! I feel like I am getting my life back! I am having my first ECG next Friday. I am so thankful for this medication and the ability to help so many people! 🙂