Anyone take new drug Camzyos (mavacamten) for HCM?

Hi Kelli, thanks for the tip! I had no idea that had grapefruit in it.
My understanding of it is that grapefruit can reduce the efficacy of the drug. It does the same to statins (cholesterol drugs), so at most is like missing a dose. Disclaimer: I’m not a doctor, but I’ve seen all episodes of House. Lol.

We have many parks and forest trails up here for Charlie and I to explore up here in Canada.
Since my walks are getting longer I think I’m now just running into my lack of fitness due to being sedentary for a long time. I’ll just do what I can and try not to over do it while I build back my fitness (and hopefully lose weight at the same time). My next echo is June 23rd

Good morning-Something happened last night that I wanted to share so that it doesn't happen to any of you. My daughter is home visiting and decided to make a special cocktail for us. It had Empress 1908 gin in it, which is a beautiful purple colored gin. It is organic and is colored from pea blossoms. It has other things in but the problem came when we discovered it has grapefruit peel extract in it. I had about 3-4 sips when we discovered this. I decided to call the 24/7 line to ask if this was ok. The pharmacist told me that grapefruit peel is not OK, that it has the harmful enzymes in it and to watch myself for the next couple of hours and if necessary, go to ER. Luckily nothing happened and I am fine, but will be much more careful from here on out. I have been careful about grapefruit juice, but learned a new lesson. 🙂 Bummer because the cocktail was yummy!

My echo is scheduled for June 19th. So far I feel fine.

Charlie is adorable!!! Gorgeous scenery too...glad to hear you are doing well @hansj. That was scary sounding when you ran out of meds for five days! You and @kelliw are on the same timeline it sounds like. I'm glad you can help each other by sharing information. How long after the lower dose, will you have your next echo?

Yes, it was a mix up in communication but my doc has it all figured out now.
My pup Charlie is loving all these walks

I just got really dizzy in the grocery store. I had 2 cups of coffee this morning, which I rarely do. That could be the problem. Hoping to go for a walk later too. Did you run out because of the prior authorization problem, like my doctor and I had this week? It really helps talking to you since we are in the same situation.

Hi Kelli, yes I’ve been on the lower dose since mid-week. No noticeable change, but that time I ran out I went 5 days before it was a problem. My daily walks should be a good indicator because I couldn’t do any of that for the past couple years. If the dose is too low I’m sure I’ll notice.

Hi Hans-Did you start your new lower dose? I started 2.5 mg yesterday. Hope you are still feeling great! 🙂

Good morning! I thankfully received my new prescription yesterday. I am now on the lower 2.5mg dose. I feel the same today-great-am just so hoping I don't start feeling lousy when the 5.0mg dose gets out of my body. The pharmacist said Camzyos stays in your system for 6-9 days. Hopefully this is a good thing! I will let you know. 🙂