Anyone take new drug Camzyos (mavacamten) for HCM?

How bizarre! Do you think this is a side effect of Camzyos @kelliw?
I can't wait to hear if anyone else is using CBD oil and taking Camzyos and can't wait to hear what you hear back from the specialty pharmacist!
Do you think you did something to your foot since school started and you are probably running around like your hair is on fire? If it keeps up like this maybe you should see about getting an x-ray?

Hi Camzyos Family! I started back to teaching yesterday, so it's been crazy! I have a question that I will ask the specialty pharmacist tomorrow, but I have been soooo excited to be feeling normal again, doing everything I want to do, and then last week the top of my right foot started really hurting when I walk, especially after sitting for awhile. My ankles are also hurting. My aunt is into herbal, eastern medicine, and made this tincture that has made lots of people feel so much better for different hurts. It is all natural with CBD oil, grapeseed oil, essential oils, menthol crystals and beeswax beads. Can I do CBD oil with Camzyos? Are any of you using it? I got an hour foot and calf massage, which felt great, but didn't last. Would love input... 🙂

Absolutely! Camzyos has been a great help for me. My experience was a few days of very mild reaction to the medication- which completely disappeared. Very happy customer here - as they say!

I am supposed to start it on 8/16/23. Anyone else out there on it with some encouragement/advice for me?

I am supposed to start it on 8/16/23. Anyone else out there on it with some encouragement/advice for me?

I am supposed to start it on 8/16/23. Anyone else out there on it with some encouragement/advice for me?

I have an update on my update - it's a procedural matter regarding renewing a prescription with the specialty pharmacy. In my case the pharmacy is called Optum. My next Echo is in three months because it appears that I am responding well to the dose. My doctor's office requested a three month prescription. Things I learned being on the phone forever with Optum: Camzyos is not allowed to be a three month prescription only a 30 day prescription. Every month I have to call in the prescription (since there is no change) NOT the doctor's office! They said that was because it is going to a home address. I can only call in when I have a 7 day supply left or less.

My doctor's office was not aware of this. I have no idea if this is a Restriction Prescription pharmacy rule but the only way I found out why my medicine was going to be delayed (which I fixed) was/is by calling the pharmacy and knowing what questions to ask. I have no idea if this is true for everyone or only Optum pharmacy. I have had so many shipping issues with Optum that I have called them every time I was told by my doctor's office that a prescription was being sent and each month it has been something. So be your own advocate. To me, it seems like they do not communicate with the doctor's office. What is most frustrating is that my doctor is chairman of Washington University's cardiology dept. and his department was part of the group involved with the trials for this drug and they are still involved. Sorry for being so longwinded but I recall others have had delivery issues in the past.