Anyone take new drug Camzyos (mavacamten) for HCM?

avcowie
OOPS! I left a letter out of the acronym for New York Heart Association. It's NYHA . . . a classification for heart conditions according to severity. Class I means no trouble with physical activity. Class IV means unable to carry out any physical activity without discomfort. I had to ask my Doc which I was so not surprised you are not familiar with it.

I am 56. I’ll write an update after surgery. Please define what an NYA is and what the classification means. I don’t know much of the jargon.

I, too, had no benefit. I took obit for 8 months and had a septal myectomy 6 weeks ago. I feel better after the septal myectomy, although still recovering. I feel I wasted time. I was very sick on camzyos.

Please write again on this thread after your surgery. Would love to know how things went for you. May I ask how old you are and if you are an NYA class 3 or 4? Best of luck that you are scheduled before the holidays!

I am in month 4 of trying Camzyos. It seems to have a negative effect on exertion symptoms - the recovery is longer and symptoms come on abruptly. I have asked my cardiologist if I can stop taking it as I feel no benefit. Now waiting to hear from the prescribing cardiologist to stop and go back to Rythmodan. On the bright side during that same conversation Dr Ong is going to co-ordinate my surgery for septal myectomy and mitral valve repair. Fingers crossed it happens before Christmas 🤞🤞

I am in month 4 of trying Camzyos. It seems to have a negative effect on exertion symptoms - the recovery is longer and symptoms come on abruptly. I have asked my cardiologist if I can stop taking it as I feel no benefit. Now waiting to hear from the prescribing cardiologist to stop and go back to Rythmodan. On the bright side during that same conversation Dr Ong is going to co-ordinate my surgery for septal myectomy and mitral valve repair. Fingers crossed it happens before Christmas 🤞🤞

Update
I stopped taking Camzyos 5 days ago since I was feeling even more tired and anxious on it. Today I feel better, just a bit more general muscle tightness and soreness than usual. My blood pressure medication is helping my heart stay as healthy as possible until the Camzyos is out of my system. Up to 30 days is what I read. Is that correct?

I was told my co-pay would be over $3500/month. Obviously I cannot afford that. I have received 30 days free for a trial and another 2 months on a grant and will be seeking financial assistance to get ready for the future. I’m very glad you managed to get the affordable co-pay.

Yes, I’m taking it. My co-pay is $35/30 days. In my third month with this Med. At this point, I haven’t seen any changes yet.