Anyone take new drug Camzyos (mavacamten) for HCM?

Have to agree completely with @susanml. Also in Canada. I think (but not 100% sure) I was my cardiologist's first Camzyos patient. If not, certainly one of his first. He seemed to have pretty close contact with BMS, especially in (my) early days. And the BMS "program" - not sure how the US and Canadian programs compare, but I have been astounded at how quickly and thoroughly all of my questions were addressed through my nurse-case-manager. Drug interactions, food interactions, ... any concerns at all. Right from the start, they dealt with my insurance company, my cardiologist, the dispensing pharmacy. Very much a case of "leave it with me, that's why I'm here." The support has been wonderful.

Thank you so much for your response! That is great news!

Yes I do mean Verapamil.

Ive been on Camzyos for 5 months.
I had an ablation for AFib which required anesthesia with no negative results.
I’m almost 78 years old.
Goood luck with your surgery. I hope it’s successful

I’m in Canada and BMS seems to participate with the cardiologist in monitoring the prescription of camzyos. The cardiologist offered it to me last November and he has monitored me consistently since then. Ofttimes while sitting in his office he’ll refer to the BMS protocol for this drug. I feel like both of us have ample support. I’m impressed.

Do you mean Verapamil? It's a calcium blocker.

Has anyone had surgery since being on Camzyos? I am scheduled for foot surgery in July and can't find any information about anesthesia and Camzyos. I even called BMS and talked to a nurse there and she couldn't find any information on people having surgery while on Camzyos. There has to be someone who has had surgery? I am going to a cardiac clearance appointment Monday and will be having the surgery at the hospital, not the orthopedic institute as a precaution.

Good morning-I went to Steamboat Springs. Colorado, last summer and didn't have any problems. It was about 6900-8000 feet. I was there for a week. 🙂

I just started Camzyos. It took 3 months and a lot of stress to get it.
Now I feel like I’m on my own.
I had to ask for an echo. I had to tell my doc Carvedilol has a moderate interaction. I decided to take half. I’m also on Losartan which in one search showed an interaction but in another it did not. I haven’t received the results from my echo, it’s been a week…the info was very clear to get an echo before beginning..
Do I need to find another cardiologist?

I was diagnosed in 1987. I am now 75 years old and had AV node ablation, not in afib now, but started having imbalance walking few weeks ago.