1. < Hypertrophic Cardiomyopathy (HCM)
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Anyone take new drug Camzyos (mavacamten) for HCM?

Posted by captainterry @captainterry, May 25, 2022

Since FDA approval in April has anyone (non-clinical trial patient) actually obtained a prescription and had it filled? If so, when and where was the cardiologist located? Is the registration process for doctor/patient/Rx taking a long time for this much anticipated drug?
Thanks from a fellow patient!

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kelliw | @kelliw | Jul 23, 2024
In reply to @joanallione "yes it interacts with a lot of Medications and because its so new they dont know..." + (show)
Profile picture for joanallione @joanallione

yes it interacts with a lot of Medications and because its so new they dont know everything…i can understand why you are nervous 😣☺️

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Good morning! Thank you for your response. I was really nervous, but the doctors and anesthesiologist all worked closely together and happily the surgery went well and I am doing well. 🙂

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joanallione | @joanallione | Jul 23, 2024
In reply to @kelliw "Good morning-I had asked if anyone has had surgery, while on Camzyos, and how it worked..." + (show)
Profile picture for kelliw @kelliw

Good morning-I had asked if anyone has had surgery, while on Camzyos, and how it worked with the anesthesia. I had my cardiac clearance appointment on Monday and got the clearance for my foot surgery, in July. He looked up the anesthesia they usually use-Propofol, and it said there was an interaction with Camzyos, so he is calling the head anesthesiologist at our hospital to see what else they can use. I am a bit nervous-but he said I will be fine. I also need to call the specialty pharmacist about all of this and whatever pain meds they prescribe for afterwards.

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yes it interacts with a lot of Medications and because its so new they dont know everything…i can understand why you are nervous 😣☺️

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manuelpo | @manuelpo | Jul 22, 2024
In reply to @kelliw "Good morning! I had surgery on my foot last Thursday and everything went well! I was..." + (show)
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Good morning! I had surgery on my foot last Thursday and everything went well! I was nervous about the anesthesia and Camzyos, but the doctors were all informed about me being on Camzyos, and there were no issues! My cardiologist contacted the director of anesthesiology at our local hospital, and he called me! I couldn't believe it! He said he read my doctor's report and they would be using the smallest amount of anesthesia they could and I would be fine. The anesthesiologist told me he was going to try using a sedative, but would go to general anesthesia if he needed to. He ended up needing to and I am fine. Yay! Good luck with your surgery! 🙂

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Thank you!

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kelliw | @kelliw | Jul 22, 2024
In reply to @manuelpo "Hi @dwc62. Thank you for sharing that information. Do you know the name of the anesthesia..." + (show)
Profile picture for manuelpo @manuelpo

Hi @dwc62. Thank you for sharing that information.
Do you know the name of the anesthesia used in the surgery. I have pending 2 surgeries, 1 inguinal hernia and one on my right feet and I do not want any interaction with camzyos. Thank you.

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Good morning! I had surgery on my foot last Thursday and everything went well! I was nervous about the anesthesia and Camzyos, but the doctors were all informed about me being on Camzyos, and there were no issues! My cardiologist contacted the director of anesthesiology at our local hospital, and he called me! I couldn't believe it! He said he read my doctor's report and they would be using the smallest amount of anesthesia they could and I would be fine. The anesthesiologist told me he was going to try using a sedative, but would go to general anesthesia if he needed to. He ended up needing to and I am fine. Yay! Good luck with your surgery! 🙂

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1 reply
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mustang68 | @mustang68 | Jul 9, 2024

Hello everyone. I am not sure if I am posting my question correctly so please forgive me if I am not. I have been on Camzyos for 10days- 5mg. No improved symtoms so far. No side effects either. I have read here that some people feel better right away. have anyone, like me, experienced a longer delay for the drug to kick in? My first Eco after taking the drug is in about two weeks. I appreciate anyone's comments and thoughts. thank you very much.

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flyman437 | @flyman437 | Jul 5, 2024

Hi ,anyone taking 7.5 mg ,two pills 5mg and 2.5 mg ?

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manuelpo | @manuelpo | Jun 22, 2024
In reply to @dwc62 "I just read my surgery report and the Anesthesiologist just called it General Anesthesia. I hope..." + (show)
Profile picture for dwc62 @dwc62

I just read my surgery report and the Anesthesiologist just called it General Anesthesia. I hope this helps.

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Thank you!

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dwc62 | @dwc62 | Jun 22, 2024
In reply to @manuelpo "Hi @dwc62. Thank you for sharing that information. Do you know the name of the anesthesia..." + (show)
Profile picture for manuelpo @manuelpo

Hi @dwc62. Thank you for sharing that information.
Do you know the name of the anesthesia used in the surgery. I have pending 2 surgeries, 1 inguinal hernia and one on my right feet and I do not want any interaction with camzyos. Thank you.

Jump to this post

I just read my surgery report and the Anesthesiologist just called it General Anesthesia. I hope this helps.

REPLY
1 reply
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manuelpo | @manuelpo | Jun 21, 2024
In reply to @dwc62 "Like I mentioned I had major back surgery in January, I was under 3-4 hours I..." + (show)
Profile picture for dwc62 @dwc62

Like I mentioned I had major back surgery in January, I was under 3-4 hours I had no complication between the Camzyos and the anesthesia.

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Hi @dwc62. Thank you for sharing that information.
Do you know the name of the anesthesia used in the surgery. I have pending 2 surgeries, 1 inguinal hernia and one on my right feet and I do not want any interaction with camzyos. Thank you.

REPLY
2 replies
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dwc62 | @dwc62 | Jun 20, 2024

Like I mentioned I had major back surgery in January, I was under 3-4 hours I had no complication between the Camzyos and the anesthesia.

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