C. diff relapse?

Posted by patts @patts, Sep 1, 2019

How many have had a relapse. I finished my two weeks of vancomycin and believe I still have it. Did a stool sample Friday, so I guess I’ll see. Tired of isolation, Clorox and mood.

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Profile picture for patts @patts

Okay, all my c diff people, lol. Doc says I’m cleared to go out now, etc., since my bowels have pretty much righted themselves. I finish off my Vancomycin prescription midday tomorrow.

I’m going to bleach mop the bathroom and fixtures and continue with the Clorox wipes at least another week. I’ve an appointment to see her in three weeks. But IF I start having sympathy again, to call her immediately.

She will then prescribe a 6-week taper program and/or go with a FMT. Funny, being a gastro doc, she’s freaked out by the thought of FMT. I told her if it works, I’m all for it.

I told her my concern with multiple relapses and how I’m afraid I’ll telapse right before our dream British Isles cruise next August. She said she’d give me a prophylactic Vancomycin prescription to keep me “clear.”

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And I have relapsed. 🙁. Will be starting a taper for 6 weeks tomorrow (CVS had to order it). So, I’ll miss 2 trips in those 6 weeks. Staying home for 6 more weeks isn’t gong to be fun.

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Profile picture for Dana, Volunteer Mentor @danab

Ho @patts, i sure feel your pain. Are you sure its a relaps? It took me a month to finally get over the symptoms. I had finished the meds but still needed frequent bathroom visits. Them finally after a month my bowels started acting a bit more normal.

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Can you tell me more about your experience? I have had Cdiff that went undiagnosed for 7 months. I am on my last day of 10 day dificid and but still have between 1-3 watery diarrhea episodes most days. But I can tell it’s definitely working, all my other symptoms are less also. Did you do retesting and did you still have diarrhea after your antibiotic treatment for the c diff? I’m worried I’m still contagious

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I would think if you’re still having diarrhea you may still have it, but I’m not a doctor. After my first dose of Vancomycin and still having issues, I was tested and it came out positive. The second time turned out to not be c diff. I asked my doctor about how I could tell and she reminded e that c diff has a certain odor.

Voice your concerns with your doctor

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While I have never experienced a relapse, I did contract it three separate times. Then that was the last of it.

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Profile picture for patts @patts

I would think if you’re still having diarrhea you may still have it, but I’m not a doctor. After my first dose of Vancomycin and still having issues, I was tested and it came out positive. The second time turned out to not be c diff. I asked my doctor about how I could tell and she reminded e that c diff has a certain odor.

Voice your concerns with your doctor

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Will you do FMT?

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Currently 3 weeks recovery from C-Diff after taking vancomycin . I have two questions.
I am scheduled for a routine colonoscopy in November (5 years since last colonoscopy). That will only be 2 months of recovery time from C-Diff. Will the colonoscopy create a relapse of C-Diff? Should I wait to have the colonoscopy since this is a routine 5 year check?
Second question is I am due for a tetanus shot (10 years since last one) Can I get the tetanus shot or will it create a relapse of C-Diff?
I do not want a relapse of C-Diff and I am only 3 weeks into recovery!

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Profile picture for minge @minge

Currently 3 weeks recovery from C-Diff after taking vancomycin . I have two questions.
I am scheduled for a routine colonoscopy in November (5 years since last colonoscopy). That will only be 2 months of recovery time from C-Diff. Will the colonoscopy create a relapse of C-Diff? Should I wait to have the colonoscopy since this is a routine 5 year check?
Second question is I am due for a tetanus shot (10 years since last one) Can I get the tetanus shot or will it create a relapse of C-Diff?
I do not want a relapse of C-Diff and I am only 3 weeks into recovery!

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I am eight months into recovery,..........and now, because of a dental issue, I have to take another antibiotic. I am praying this does not created a relapse of the C-diff. Supposedly we chose one that would have less risk. My question back to you is why would a tetnus shot cause a relapse of C-diff? This whole situation is so awful.

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Profile picture for euqcaj @euqcaj

I am eight months into recovery,..........and now, because of a dental issue, I have to take another antibiotic. I am praying this does not created a relapse of the C-diff. Supposedly we chose one that would have less risk. My question back to you is why would a tetnus shot cause a relapse of C-diff? This whole situation is so awful.

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Do not take Clindamycin if your dentist gives you this antibiotic. It causes C-Diff! That is how most people that take Clindamycin get C-diff including me. My tentanus shot was a question if it may cause a relapse. Just trying to be safe and get all the facts

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Profile picture for minge @minge

Do not take Clindamycin if your dentist gives you this antibiotic. It causes C-Diff! That is how most people that take Clindamycin get C-diff including me. My tentanus shot was a question if it may cause a relapse. Just trying to be safe and get all the facts

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Oh yes! That is how I contracted C-diff! It WAS Clindamycin that was prescribed by my dentist back in February of this year. I almost died and that is not an exaggeration. I was so so sick. Then I cried when they told me I had to take another antibiotic to fight the C-diff. It was Vancomycin and it did work, thank God above. But now I have the SAME dental problem that I had back in February, except it is worse now. So back on the antibiotic before surgery. Would you please let me know about the tetnus shot? I would like to be safe also. It is important we question everything. Best wishes to you. Jacque

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Profile picture for euqcaj @euqcaj

I am eight months into recovery,..........and now, because of a dental issue, I have to take another antibiotic. I am praying this does not created a relapse of the C-diff. Supposedly we chose one that would have less risk. My question back to you is why would a tetnus shot cause a relapse of C-diff? This whole situation is so awful.

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I had cdiff in Jun of 2019 and the treatment worked as I have not had it since. But I have been on antibiotics both for a lung infection and for dental work. No relapse at all and the only antibiotics I'm on now is for dental work. My dentist prescribed amoxicillian which is safe for c-diff sufferers. As another note when I was on Doxycycline for my lung infection I was also put on Lactobacillus Acidophilus to help balance my good bacteria in my gut to keep the bad bacteria at bay and it worked as I was on the Antibiotics for about year and no c-diff. Be aware also to get the exact type of the Lactobacillus Acidophilus in that order as the dominate part comes first and you don't want the acid based type. Which seems to be more available than the lacto based type. I got mine on Amazon. Hope that helps.
Blessings

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