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Carlos Manuel
@carlosmanuel

Posts: 7
Joined: May 17, 2012

Buttocks irritation from seating

Posted by @carlosmanuel, May 17, 2012

Seating even in a recliner, or lying in bed face up becomes painful. I get red blotches and also painful follicles. I have seen several dermatologists and none has ever had a patient with this problem. I have been prescribed antibiotic creams, etc. Nothing helps. Has anybody suffer from this? Can a frien help?

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bluecinnamon
@bluecinnamon

Posts: 7
Joined: May 16, 2012
Posted by @bluecinnamon, May 9, 2014

Update: Doxepin doesn’t help either (i.e, the tertiary care dermatologist’s Rx for me a few months ago).


Carol Williams
@kamuela

Posts: 7
Joined: Oct 05, 2014
Posted by @kamuela, Oct 5, 2014

I am using Allegra with 5mg prednisone whenever I get absolutely desperate. The hives are still spreading however. Putting an AC in my bedroom as I noted that having AC seems to handle them pretty effectively.


bluecinnamon
@bluecinnamon

Posts: 7
Joined: May 16, 2012
Posted by @bluecinnamon, Sep 3, 2016

Good to know, re. the Allegra with 5 mg prednisone. I’m hoping to avoid having to use steroids (the prednisone), but am sure that would help me, too.

To update my running comments above on how I’m handling this disabling heat-skin rash-itch problem: I had to send my Chilipad unit in for repairs and came up with a fairly good interim night-cooling solution (other than super-cold air, which isn’t comfortable for me, either). I use the wool mattress pad mentioned above (these are also sold online, btw) and put it under the bottom sheet, but over my pillow. Then I put two Cryo-Max cold packs (these packs have multiple small sections to them so if one of these small sections breaks, none of the other small sections are affected, so no additional leaking) between the top of the pillow and the wool pad and one or two other cold packs (any kind of pack, put in a plastic bag of some sort) between the pad and the bottom sheet, to the side of where I would be sleeping. These packs stay cold all night long, amazingly, and I have been able to sleep all right with this set-up. I prefer the chilled mattress pad, the Chilpad, though. I also run a small fan aimed toward me from a low night table all night (year-round) – really can’t sleep without that, either. Starting year 7 with this conditon. Dermaticgraphism can last as little as a few days to the rest of one’s life, according to information from the Internet, with numbers all in between.


Colleen Young, Connect Director
@colleenyoung

Posts: 3893
Joined: Jul 23, 2014
Posted by @colleenyoung, Sep 3, 2016

Welcome back to Connect, @bluecinnamon. I appreciate you’re returning to give the community an update on how you’re managing your disabling heat-skin, rash-itch problem. You’ll notice that Connect has changed a bit since you were last here. I hope you’ll take a look around and read some of the other discussions and join in.


bluecinnamon
@bluecinnamon

Posts: 7
Joined: May 16, 2012
Posted by @bluecinnamon, Wed, Jul 5 1:17pm

Thanks, Colleen.
—————–
Further updates, ‘fyi’: I discovered that the _small fan blowing towards the head of the bed all night_* is sufficient to keep me cool at night year-round. I of course still use the chilled mattress pad in warm weather, too. My 5-yr old ThermaZone** unit broke – had a good run! – and I decided not to replace it once I realized that the moving air was all I needed.

My self-help systems/tools have varied over the years – for instance, I no longer use the Chillows (although they were great for use around the house, kept chilled in the fridge) – I replaced these with the 6″ x 12″ Cryomax freezer gel mats.
Also, because I have prevented _heat-itch-scratch_ cycles in the last five-to-six yrs (for the most part), I’m usually able to tolerate somewhat higher temps as long as I have sufficient ice packs and fans around, and the humidity levels are reasonable.

Information from a few Internet articles has led me to believe that the incidence of _symptomatic dermaticgraphsim_ (also known as _dermagraphism_) in the general population is about 1:40,000, btw.

* See my Set. 3, 2016 update/post above.
**See my Jan. 11, 2014 update/post above.

Posted by @kanaazpereira, Thu, Jul 6 10:12pm

Thank you so much for all the updates, @bluecinnamon; I know that other Connect members will appreciate your insights.
I was doing a bit of research about Dermatographia online, and noticed that stress, or emotional upsets could trigger an episode; may I ask if you would share some thoughts on this?


bluecinnamon
@bluecinnamon

Posts: 7
Joined: May 16, 2012
Posted by @bluecinnamon, Tue, Oct 31 9:36am

Regarding your question if _stress, or emotional upsets could trigger an episode_ , my answer would be that these ‘inputs’ would make the need for cooling agents even greater, but that the dermaticgraphic condition exists all the time, regardless of those inputs.

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