Burning sensations on skin pressure points, i.e. elbows, forearms, hands buttocks, feet.

Posted by jimbourg8 @jimbourg8, Oct 25, 2011

Does anybody have similar symptoms like these. It is not exactly like a peripheral neuropathy but seems similar….It just started happening in June 2011. Almost constant feeling of burning pain when ever I am sitting or anything touching those hyper sensitive areas of my body. As soon as I get up and move, there is relief. As soon as I sit down or exert the slightest pressure on those areas, there is that burning , nagging , type of pain. I had received a diagnosis of Hypothyroidism during that time and have been taking the low thyroid medication for 3 months now…but no relief on this problem………..anybody out there with similar or same symptoms…..I’d be glad to find out and if they for a resolution. So far my Healthcare providers dont know yet……maybe I need to see a neurologist ?

7 years ago I had complicated bunion surgery. I also had severe foot pain where I could barely walk. Looked didn't work. He decided to remove a neuroma, a tumor formed of scar tissue. The pain on top of my feet disappeared. I also have fibromyalgia, chronic fatigue syndrome, ms, lupus (not active), sjogrens, diabetes 2 pills 20 yrs,( severe hand tremors can't test), epilepsy(only voice tremor sometimes), MGUS (see a cancer Dr twice yearly for labs, I have a bad protein in my plasma.), Severe back pain, Severe narrowing of vertebrae shots didn't work including 8 at once! Nerve pain, chronic kidney disease 3, & brachioradial pruritus.

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AFTER reading your post/physical problems, I can no longer complain about anything !! Ever !!

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I had forgotten to put in there, that around 2005 an MRI my Neuro did showed my cerebellum is shrinking, which is atrophy, dying. Many things can cause it, nothing can cure it. Ms is one of them. Talk about scared to death, definitely a nightmare which I ignore too. An MRI last year showed no change.

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@anniemaggie

I had forgotten to put in there, that around 2005 an MRI my Neuro did showed my cerebellum is shrinking, which is atrophy, dying. Many things can cause it, nothing can cure it. Ms is one of them. Talk about scared to death, definitely a nightmare which I ignore too. An MRI last year showed no change.

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@anniemaggie I also have cerebellum & cerebral atrophy and initially presented with burning in several places such as you’ve described. Have you been tested for small or large fiber neuropathy? An ANS Tilt table as well as EMGs/NCVs confirmed both for me. My overall disease is complicated but was just wondering if they ever explored those for you.

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I will look into it. Almost walked out of new Neuro cause she said she was the Dr and only she could talk. Waited 6 months to see, but needed mri done, having trouble finding neuro, mine died of cancer in mich, after death read he was world famous, never knew. No one will help me with ms. I gave myself shots of copaxone a yr, but he decided against anything else because I have so many inflammations. I knew I had ms, looked for 16 yrs after I woke up 95% paralized, gone next day. Totally bloodshot eyes, voice like in a well, scary.

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@anniemaggie I wish you luck. My disease is neurodegenative like MS (lots of overlap) and I understand how hard it is to find a great Neurologist. Fortunately, I found mine at Mayo in Rochester, MN even though I am from Dallas, TX. He moved to the Mayo AZ Clinic and I have followed him all my years. I have found that a Neurologist with a neuromuscular background has been more helpful than just a general Neurologist.

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Thank you to everyone and your kind words. My primaries all tell me I am complicated. My Neuro & team discovered using MRS, how NAA is crucial in the formation of myelin. How the enzyme that breaks down NAA is located in oligodendrocytes in spinal cord & brain. His name was Dr James Garbern, died cancer 2011. I am in Seattle moved from mich.Terrible drs here. He was an ms specialist and children's rare Neuro diseases. He would pick up patients at airport, take them to museum while in town. Amazing. Wrote papers, etc.

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@anniemaggie

Thank you to everyone and your kind words. My primaries all tell me I am complicated. My Neuro & team discovered using MRS, how NAA is crucial in the formation of myelin. How the enzyme that breaks down NAA is located in oligodendrocytes in spinal cord & brain. His name was Dr James Garbern, died cancer 2011. I am in Seattle moved from mich.Terrible drs here. He was an ms specialist and children's rare Neuro diseases. He would pick up patients at airport, take them to museum while in town. Amazing. Wrote papers, etc.

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I looked that up, I had never heard of it and it is many categories, some that I have. My rheumatologist sees me for my autoimmunes. I constantly have very weird episodes that no drs understsand. Interesting. At the Univ of Michigan is when I got most of my diagnoses, but I self diagnosed, sjogrens (dr called 7:30 pm to apologize I did have sjogrens after hounding him for 6 mos, lip biopsy) lupus, diabetes. I forgot to add the ehlers-danlos hyper mobile syndrome to my list, see I ignore then forget problems. Saw movement disorder specialists for finger tremors, of course could not tell me why, never went back they were so condescending.

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@anniemaggie

I looked that up, I had never heard of it and it is many categories, some that I have. My rheumatologist sees me for my autoimmunes. I constantly have very weird episodes that no drs understsand. Interesting. At the Univ of Michigan is when I got most of my diagnoses, but I self diagnosed, sjogrens (dr called 7:30 pm to apologize I did have sjogrens after hounding him for 6 mos, lip biopsy) lupus, diabetes. I forgot to add the ehlers-danlos hyper mobile syndrome to my list, see I ignore then forget problems. Saw movement disorder specialists for finger tremors, of course could not tell me why, never went back they were so condescending.

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@anniemaggie Finger tremors are commonly seen in cerebellum atrophy. They’re intermittent as opposed to resting tremors

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Thanks interesting. They first thought it was parkinsons.They kept saying not essential tremors. Wanted me to see a Neuro shrink, I balked! Not happy, didn't want on my record and I was not making it up, but was being punished. My brother in law was furious( he was a vet) said to quit, sister also had ms and they keep pushing mindfulness on her & me. She died at 74 low heart rate among other things.

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@hopeful33250

@colleenyoung @jimbourg8 and @lisaw I’ve also had the RLS symptoms. It seems to be related to Parkinson’s. There is a Parkinson’s med which helps quiet the “jitters” called Amantadine. If I’m having an “active” night I just take 1/2 of tab and it really settles everything down. It’s not as strong as some of the other drugs but it works quite nicely for me. I have found that it helps with the vivid dreams which are also Parkinson-related. While I don’t think that Amantadine is suggested for RLS, it might be worth a talk with your doctor to perhaps give it a try. Teresa

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@colleenyoung @jimbourg8 @lisaw I developed RLS in past years and am unable to tolerate most pharmaceuticals. My antidote is to drink ap. 8 oz. of diet tonic water each night, ap. an hour-and-a-half before I want to go to sleep. The tonic water has a small amount of quinine in it and seems to do the trick for me.

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@elizm

@colleenyoung @jimbourg8 @lisaw I developed RLS in past years and am unable to tolerate most pharmaceuticals. My antidote is to drink ap. 8 oz. of diet tonic water each night, ap. an hour-and-a-half before I want to go to sleep. The tonic water has a small amount of quinine in it and seems to do the trick for me.

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I am allergic to all pain meds, causes very light all over itching. Rather have pain. I have stopped pain meds after 2 pills after surgery. I have to take two days apart. I have severe itching all over, forgot to add that on my list. I take hydroxzine for that, really helps. My Dr said itching from pain meds is very common. But I have so much itching, all over kind, another kind just on my arms related to cervical vertebrae problems, and pain meds itching. It's a wonder I keep it all straight!

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Hey. This is old post but if u ever found out what was wrong pls reply. I was experiencing this on my right side all over the backside of body and I finally have an answer but it was not disease. Was dx w lupus but I really don’t think that what I have but I stay on low dose of plaquenil bec dr told me if I come off it, as I did once that it can stop working if u go on/off them. If interested in what I figured out pls reply

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@jimbourg8
Have you asked your neurologist if it could be pudental nerve irritation/malagia/neuralgia? In addition, a competent physical therapist could assess whether the pudental nerve irritation is caused by internal muscles which are too tight. It's a thought.

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@pecan111

Hey. This is old post but if u ever found out what was wrong pls reply. I was experiencing this on my right side all over the backside of body and I finally have an answer but it was not disease. Was dx w lupus but I really don’t think that what I have but I stay on low dose of plaquenil bec dr told me if I come off it, as I did once that it can stop working if u go on/off them. If interested in what I figured out pls reply

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@pecan111
Please… don't leave us hanging!

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